Introducing our new CTF mascots, Moxie and Sparx, who are helping the Children’s Tumor Foundation connect with families to end NF. Moxie and Sparx will be your guides as you and your family follow along with the NF Parent Guidebook, and will lead you through some fun activities for you to engage in with your child. Parents can share these activities with their child, such as a coloring page for younger children, or conversation starters for older children and teens.
The NF Parent Guidebook: How to Help Children With Learning Challenges Associated With Neurofibromatosis Type 1 is a home-based, 160-page resource designed to provide support and education to you and your family. It will guide you through your journey with NF and associated learning, behavioral, or social challenges. The NF Parent Guidebook is a place to find ideas, strategies, and suggestions that will help you understand and meet the needs of your family and child.
The NF Parent Guidebook is available for download at no charge at http://www.ctf.org/resources/nf-parent-guidebook.
You may also purchase a full-color, printed copy for $25 at ctf.org/store.
The NF Parent Guidebook is the product of a multi-year CTF research grant given to Maria Acosta, MD, of the Children’s National Health System. Other contributors to the Guidebook include Beth Kaplanek, RN, BSN, and Karin Walsh, PsyD.
