We’re ecstatic to announce the winners of the 2022 Make NF Visible Summer Photo Contest!
We know how hard the NF community works to raise awareness – and we were thrilled to see where you made NF visible this summer!
Scroll down for the winning photo, a runner-up and honorable mentions! And remember, you can always share your photos with us by using the hashtag #EndNF and/or sharing your Story of NF at ctf.org/tellyourstory!
WINNER
Our family went to Hershey Park. My husband wore his EndNF t-shirt. A family approached us in the park saying they loved his shirt. The mom said both herself and her son have NF and thanked my husband for spreading awareness.
-Submitted by Kristine Luster
RUNNER-UP
Our grandson Owen is an NF fighter. Our family walked on Vashon Island WA to support him!
-Submitted by Suzanne Ostrom
HONORABLE MENTIONS
(in no particular order)
My husband and 2 of our 3 children have NF 1. He runs the Tough Mudder each year and now my children run the Mighty Mudder.
They are examples of being strong and never letting a diagnosis stop you from living life.
-Submitted by Karen Strassburg
It was taken May 17 for NF Awareness Day.
-Submitted by Brittany Arguello
This was taken a top Mt. St Helen’s here in WA state.
-Submitted by Brian Bauer
The annual Roll for a Cure is hosted each year in memory of my daughter,
Mariel, who suffered and died from NF1, by her best friend.
-Submitted by Alesa Story
Owen, age 2, living with NF1. Showing his strength.
-Submitted by Shannon Manfredo