Patients with tibial bowing due to NF1 may be eligible for a research study at the University of Utah.
More information about eligibility for this study may be found on the homepage of the NF Registry (www.nfregistry.org). Joining the NF Registry gives you access to updates on clinical trials and perspective on how other NF patients compare to you regarding symptoms and treatments. It is open to patients (and parents of patients) with any form of NF.
To contact the researchers directly, please call Heather Hanson or Dr. David Stevenson at the University of Utah Clinical Genetics Research Program at 801-587-9017, or 801-581-4296, or 877-942-6600.
