I was diagnosed at birth. Unidentified Bright Spots were found during an MRI when I was seven, which later turned out to be an astrocytoma on my corpus callosum. That was partially removed when I was 16.
If I were asked this question a month ago, I would have said that it impacts my emotional well-being, my confidence, and my appearance, but despite that, I have built a beautiful life for myself with a great career, the best friends, a person could hope for, and summited my own personal Everest. In other words, I fought back, and I won, knowing there was a new battle around the corner. However, I learned just a few weeks ago, as of writing this, that I have an extremely rare tumor (Triton tumor; an MPNST) that has metastasized and has given me a few months left, from what I’m told. 
Each tumor and procedure that has interrupted my life has become progressively worse, so each new adventure is that defining moment. Now, it’s this cancer battle I am going to lose. But on a more existential note, my self-confidence is low enough to say that my NF is my defining characteristic.
I am a Technical Writer who has worked across multiple industries. I am the luckiest person in the world because I got to work my dream job at a wonderful salary and am respected in my field. Writing poetry, playing games with my friends, and discovering new music makes me happy.
Favorite Song
“Great Ghosts” – Mount Eerie
Dream Superpower
The ability to forgive myself.
Favorite Food
This varies, but I will never turn down a hearty chicken salad.
Fun Fact
I’m obsessed with parking garage architecture and design.
