Stories of NF: Owen M

Owen was diagnosed with NF 1 before the age of one. Shortly after, Owen started his first round of chemotherapy for an optic glioma. As a family, we had never heard of NF and came across Children’s Tumor Foundation after searching for information online. It was a concerning time and CTF provided us with information, resources and connections to other NF families. Abou A teenage boy stands with arms outstretched in front of a colorful mural of wings and a sun, wearing a casual t-shirt and shorts. t two years ago, after years of stable MRIs, Owen was diagnosed with two new brain tumors. Owen has gone through additional surgeries, radiation and chemotherapy with strength and courage. He’s a fighter and continually amazes us. Throughout Owen’s lifetime we’ve participated in CTF events to raise funds and awareness all in honor of our favorite NF hero. – Owen’s mom, Jessica

NF is just part of who I am. For the future I can’t do some of the jobs I would like, such as a police officer or to be in the military, because of my disability. But the way people have helped to care for me over the years makes me want to become a counselor and help care for others.” – Owen

“(My defining moment is that) I’ve got to meet other kids with NF and kids that are going through treatment like chemotherapy. That is what stands out most about my NF journey.” – Owen

I am a student, and I’m entering high school next school year. My dog Chloe, my older brother Joey, listening to music, Philly sports, and making people laugh makes me happy.

A woman in a marathon medal stands smiling between a boy and a man, all wearing charity shirts, at a public event.