There is an ongoing study at the National Cancer Institute evaluating an intervention to help people cope with chronic pain related to plexiform neurofibroma tumors. The intervention is called Acceptance and Commitment Training, or ACT, and it may helpful for people with NF1 because it can decrease how much pain interferes with people’s daily lives.
It is open to people ages 16 to 34 who have plexiform neurofibroma and have had chronic pain for at least the past three months.
Participants who live more than 50 miles away from Bethesda, MD may receive some reimbursement for travel and expenses. Also, all participants will receive a small monetary gift to thank them for their time each time they complete a set of questionnaires (3 to 4 times total).
To learn more about the study, please contact Associate Investigator Taryn Allen, PhD (301-496-0561, taryn.allen@nih.gov) or the study’s Principal Investigator, Staci Martin, PhD., (301-496-0561, martins@mail.nih.gov).
