Join us in exploring the inspiring journey of resilience and hope in the face of NF through the voice of Matt Hay. In his poignant memoir, Matt shares his personal experience with a diagnosis of NF2-related schwannomatosis, and the impending loss of hearing. His book “Soundtrack of Silence” beautifully encapsulates the power of music and its role in Matt’s life before the onset of hearing loss due to NF.This heartfelt narrative isn’t just about one man’s journey – it’s a testament to the strength of the human spirit in the face of adversity, especially among those living with NF. Through “Soundtrack of Silence,” Matt, a former CTF Board member, sheds light on NF, building awareness while sharing a deeply personal and emotive account. Every story matters, and Matt’s is one that resonates deeply.
“Soundtrack of Silence” is out today, from major publisher St. Martin’s Press, and available at your favorite booksellers.
Let’s amplify our NF voice and strike a chord of awareness together!
