Announcing INFER: International NF Educational Resources
Neurofibromatosis (NF), the genetic disorder that causes tumors to grow on nerves throughout the body and affecting over 2.5 million people worldwide, is too often misunderstood and misdiagnosed, leaving both patients and doctors in search of answers. NF may be variable and unpredictable, but a vibrant, dedicated and growing community of NF researchers is hard at work developing treatments to improve the lives of NF patients and their families. Guided by the principles of open science and collaboration, that information and data is made available to all.
Recognizing that for many NF patients, their first contact with a medical professional is their local doctor, the Children’s Tumor Foundation Europe has developed INFER – International NF Educational Resources – to deliver the best and most up-to-date NF expertise directly to all medical professionals who seek it. This is being done through an inaugural series of NF Masterclasses, led by the world’s leading NF experts, and presented to medical professionals across clinical and care disciplines. Each Masterclass will focus on a specific condition or manifestation affecting NF patients, presented in a medical format, and will connect participants with NF experts on that particular topic. For example, the first Masterclass, taking place October 6th, is focused on NF1 cutaneous neurofibromas, a topic that may be of particular interest to dermatologists in addition to general practitioners, medical school students, and more.
The Masterclasses will take place online approximately once a month, each on a different topic, and include real-time interaction between the expert presenter and the participants. The presentations will be conducted in English, with real-time audio interpretation available in 6 additional languages: French, German, Italian, Portuguese, Spanish and Russian . A recording of each INFER masterclass will then be made available online in each language for those who could not attend an event.
INFER is an initiative of Children’s Tumor Foundation Europe, supported by an educational grant from AstraZeneca.
To learn more and register, please visit ctfeurope.org/nfmasterclasses.
