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CTF Brings Neurofibromatosis to the Child Neurology Society Meeting

By October 14, 2010December 5th, 2023Awareness

Children’s Tumor Foundation Clinical Program Coordinator  Kathleen Berentsen is at the Child Neurology Society Annual Meeting this week in Providence, Rhode Island.  Kathleen is hosting a CTF information booth to inform  physicians and clinical staff in attendance about the CTF NF Clinic Network and in-development Patient Registry and BioBank, and share CTF’s informational brochures for families , covering  all aspects of living with NF1, NF2 and schwannomatosis.  Kathleen will attend some of the sessions including tomorrow’s special session on neurofibromatosis, and we hope to bring you a report from the meeting next week!