CTF Europe has pulled together leading NF Clinicians from the top NF centres across Europe, with the critical goal of improving and standardising care for NF patients. This newly formed 16-member Clinical Care Advisory Board (CCAB) is a key advancement in NF care. The CCAB will collaborate with the clinicians from EUPEARL, the European NF group and the European Reference Network (ERN).
Pierre Wolkenstein, MD, PhD (France) and Rosalie Ferner, MD (United Kingdom) will be the Chair and Vice Chair of the CCAB, respectively. Scott Plotkin, MD, PhD (Chair of CTF’s CCAB in the United States) is a member of the CCAB of CTF Europe and Pierre Wolkenstein is a member of CCAB of CTF US. The two CCABs will collaborate and leverage each on other’s initiatives in order to improve patient care worldwide.
| Name | Geography | Specialty | NF#? |
| Amedeo Azizi | Austria | pediatrician/neuro-oncologist | NF1 |
| Cecile Rustad | Norway | genetics | NF1, NF2, SWN |
| Cornelia Potraz | Germany | pediatric neurologist | NF1 |
| Eric Legius | Belgium | genetics | NF1, NF2, SWN |
| Eva Trevisson | Italy | genetics | NF1, NF2, SWN |
| Gareth Evans | UK | genetics | NF1, NF2, SWN |
| Ignacio Blanco | Spain | genetics | NF1, NF2, SWN |
| Juha Peltonen | Finland | genetics | NF1 |
| Michel Kalamarides | France | surgeon | NF2 |
| Pierre Wolkenstein (Chair) | France | oncologist/ dermatologist | NF1, SWN |
| Rianne Oostenbrink | Netherlands | pediatrician | NF1 |
| Rosalie Ferner (Vice Chair) | UK | neurologist | NF1, SWN |
| Said Farschtschi | Germany | neurologist | NF1, NF2, SWN |
| Shruti Garg | UK | Child psychiatrist | NF1, NF2, SWN |
| Sirrku Peltonen | Finland/ Sweden | dematologist | NF1 |
| Viktor Mautner | Germany | neurologist | NF1, NF2, SWN |
| Scott Plotkin | USA- Chair CCAB | neurooncologist | NF1, NF2, SWN |
