The Chan Zuckerberg Initiative (CZI) Science in Society Program recently announced a Request for Applications (RFA) for the third cycle of the Rare As One Network, a community of patient-led rare disease organizations that are working to accelerate research and drive progress in their disease areas. President Annette Bakker represented the Children's Tumor Foundation at the last Science in Society meeting, in Fall 2023, highlighting the NF patient, research, and medical community, the development of updated diagnostic criteria for NF, and the NF+SWN diagnosis app that CTF developed.
Through the Rare As One Network Cycle 3 RFA, CZI invites applications for a five-year grant opportunity from nonprofit/charitable patient-led rare disease organizations to strengthen their organizational capacities, develop a collaborative research network, convene their patient and researcher communities and align them along shared research priorities. CZI will create a cohort of these organizations dedicated to accelerating research across three classes of disease: channelopathies, ciliopathies, and inborn errors of metabolism. This opportunity will be open to patient-led organizations across the globe.
Click here to access the RFA announcement. Questions can be sent to sciencegrants@chanzuckerberg.com.
