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The latest news, stories, and updates from the Children's Tumor Foundation.

 

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A woman wearing a black coat and sunglasses on her head holds a young girl with face paint and a green shirt, standing in front of a wooden fence by the beach.
NF1Story of NF

Story of NF: Norah

There were many early signs that we weren’t educated enough to know how to put…
Poster for "A Different Man" featuring two men sitting side by side, one with facial disfigurement, against a dark background. Text at the bottom includes the cast and film credits.
AwarenessFeaturedNF1Press Release

Bringing NF Into Focus: A Close-Up on the Film ‘A Different Man’

With the release of the film, A Different Man, directed by Aaron Schimberg and produced…
A smiling woman with short gray hair and orange-framed glasses on her head, wearing a pink patterned scarf and a black jacket. The background shows an outdoor, wooded area.
AwarenessFeaturedFeatured EUScience & Research

Reflections About Ludwine Messiaen: A Pioneer Who Advanced NF and Other Women in NF

Personal Reflections from Four of Her Female Mentees Discover more articles in the Women in…
FeaturedFeatured EUNF Endurance

The Children’s Tumor Foundation is an Official Partner of the TCS London Marathon

The Children’s Tumor Foundation (CTF) is excited to announce our official charity partnership with the…
A group of seven diverse people, including medical professionals, a young person in a "Born a Fighter" shirt, and others, pose together for the 2023 Children's Tumor Foundation Annual Report cover.
AwarenessFeaturedFeatured EU

Children’s Tumor Foundation 2023 Annual Report

The Children’s Tumor Foundation 2023 Annual Report highlights the year’s progress in NF research, awareness,…
A close-up of a person using a tablet with text "Daily News" on the left and "pharmaphorum" on the right over a blue and white background.
CTF in the NewsFeaturedFeatured EUScience & Research

PharmaPhorum Interview: How Drug Repositioning is Accelerating Treatments for NF Patients

In a recent interview with PharmaPhorum, a leading media platform dedicated to pharmaceutical and biotech…
Logo for SpringWorks Therapeutics, featuring their name in blue and green text with a biomolecular graphic to the left.
FeaturedFeatured EUNF1PharmaPress Release

FDA Grants Priority Review to SpringWorks Therapeutics’ New Drug for NF1 Patients

The Children’s Tumor Foundation (CTF) is thrilled to announce that our long-time partner, SpringWorks Therapeutics,…
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NF1Story of NF

Stories of NF: Madeleine L.

I don’t remember much. I was just about two. But I remember growing up and…
A long line of travelers at an airport security checkpoint accompanies text: "Know Before You Go: Traveling with NF," promoting the Children's Tumor Foundation's awareness campaign on neurofibromatosis.
AwarenessFeatured

Traveling with NF: Know Before You Go

Traveling with a condition like NF can bring unique challenges, especially when navigating airport security…
Two polaroid photos: one shows a smiling couple in front of a camper; the other shows a family of three near a beach. Background includes a map and partially visible photos.
AwarenessNF1Story of NF

Turner Family Hitting the Road in Fifth Wheel to Make NF Visible!

In this heartwarming and inspiring interview, we have the pleasure of talking with Sarah and…
A person wearing a black hat and sweater sits on a couch with their hand resting on their chin. A photograph of a large metal structure is displayed on the wall behind them.
NF1Story of NF

Stories of NF: Tracy

I was diagnosed (with NF1) at birth. I have had several surgeries to remove tumors…
Flyer for a Patient Listening Session by Children's Tumor Foundation on Cutaneous Neurofibromas in NF1, scheduled for May 21, 2024.
FeaturedNF1Patient EngagementScience & Research

Summary Report from NF Patients’ Testimony to FDA about living with cutaneous neurofibromas 

This past spring, a group of six patient representatives of the NF1 community met virtually…