Thanks to bipartisan leadership in the House of Representatives and the Senate, plus the strategic advocacy of the Children’s Tumor Foundation (CTF) and the outreach efforts of the NF community, today President Biden signed into law H.R. 2471, Consolidated Appropriations Act, 2022, which secures $20 million for NF research through the Congressional Directed Medical Research Program – NF Research Program (CDMRP-NFRP).
Your NF voice was heard loud and clear! Thanks to your calls, letters, and visits, this funding continues Congress’ longstanding support of the NFRP, which has brought NF research to the commencement of clinical trials, and the continued funding will help translate these trials into effective treatments. This complements our shared mission to drive research, expand knowledge, and advance care for the NF community.
Our work, however, is not done until we have treatments for all forms of NF. We are already on Capitol Hill advocating for next year’s budget, to ensure that NF research receives the support it needs. Be on the lookout for more updates in the near future.
Thank you to the entire NF community – working together, we are advancing scientific discoveries and improving outcomes for NF patients. Together, we will END NF.
