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The latest news, stories, and updates from the Children's Tumor Foundation.

 

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Image of a digital poster for the 2024 National Gala hosted by the Children's Tumor Foundation, featuring a colorful background.
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National Gala 2024 Cloud Carrier Recipients: Allison and Kip Clarke

The Children’s Tumor Foundation is honored to recognize Allison and Kip Clarke and celebrate the…
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NF2-SWNSpecial EventsStory of NF

Story of NF: Markus S.

As shared by his mom Natalie. Natalie’s cousins are Kristen Anderson-Lopez and Robert Lopez, awarding-winning…
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Collaborations & PartnershipsFeaturedFeatured EUNF1PharmaScience & Research

FDA Grants Fast Track Designation to Healx NF1 Treatment

The Children’s Tumor Foundation’s support of the NF1 programs at Healx is accelerating progress! We…
FeaturedNF2-SWNSpecial EventsStory of NF

Meet Our 2025 NF Ambassador: Leanna Scaglione

On Monday, November 18, in New York City, during the Children’s Tumor Foundation annual National…
Image of a digital poster for the 2024 National Gala hosted by the Children's Tumor Foundation, featuring a colorful background.
FundraiserPress ReleaseSpecial EventsWays to Give

Honoring Progress and Celebrating Resilience: Children’s Tumor Foundation Hosts National Gala in New York City

On Monday, November 18, 2024, NF patients, leading philanthropists, pioneering researchers, top healthcare providers, civic…
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FeaturedSpecial Events

Meet Our Humanitarian Awardee: Sarah Wengel

Sarah Hutchinson Wengel lives in Little Rock, Arkansas, with her husband of more than 23…
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Awards & GrantsFeaturedFeatured EUNF1Science & Research

Young Investigator: Q&A with Alexis Stillwell about NF1 and skeletal development

The Young Investigator Award (YIA) provides two-year salary support to early-career NF researchers to help…
Conference poster titled "Fueling the Drug Discovery Engine for NF" with logos of Children's Tumor Foundation and European NF Group, featuring a DNA strand and a globe.
Collaborations & PartnershipsFeaturedFeatured EUNF ConferenceScience & Research

2024 Global NF Conference Highlights

We hope you enjoy this summary of the important research presented at the Children's Tumor…
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NF1Story of NF

Story of NF: Jana W.

Jana was seven when she found out about NF. It was very fearful. But she…
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Featured

Legacy Gift: Melissa D. Skyer

The Children’s Tumor Foundation is deeply honored and grateful to receive a legacy gift from…
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NF1Story of NF

Story of NF: Remy H.

Remy was little when she was first diagnosed (with NF1). I kept saying something was…
Awards & GrantsFeaturedFeatured EUNF1NF2-SWNPress ReleaseScience & ResearchSWN

8 Bold Minds, $888K to Fuel the Future of NF Research

Children’s Tumor Foundation invests in Young Investigators with research projects focused on hearing loss, NF2-SWN…