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The latest news, stories, and updates from the Children's Tumor Foundation.

 

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NF Clinic Network (NFCN)

NF Clinic Network Expansion: Recently Joined NF Clinics

The Children's Tumor Foundation (CTF) is thrilled to recognize the new clinics that joined the…
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NF1Story of NF

Story of NF: Hamideh

I was diagnosed with NF when I was 18. When I was born, I had…
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AdvocacyFeatured

Ensuring NF Research is Our Priority in Washington, DC

CTF is steadfast in advocating for federal research funding that drives progress for NF patients.…
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Press ReleaseSpecial Events

“Dancing with Our Stars” Lights Up Bentonville for its Fourth Year, Raising Funds and Hope for the Children’s Tumor Foundation

On Saturday, March 8, 2025, the Northwest Arkansas community will gather for an unforgettable evening…
Awards & GrantsFeaturedFeatured EUNF1Science & Research

Young Investigator: Q&A with Alex Dyson about NF1 and brain mechanisms

The Young Investigator Award (YIA) provides two-year salary support to early-career NF researchers to help…
Collaborations & PartnershipsNF1

Whitepaper on Transition From Pediatric to Adult Healthcare

The Children's Tumor Foundation is excited to share a new whitepaper on a vitally important…
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AwarenessFeaturedFeatured EU

Good2Give Podcast: Understanding and Combating NF: Insights from the Children’s Tumor Foundation

Click here to jump to the podcast transcript.  An episode of the Good2Give Podcast, hosted…
Cover art for “Walk a Mile in My Shoe” by Orrin Evans and the Captain Black Big Band, featuring a pair of worn pink shoes.
Featured

Celebrating Orrin Evans: A GRAMMY® Nomination Rooted in Resilience

The Children’s Tumor Foundation proudly celebrates the recent GRAMMY® nomination of Orrin Evans and The…
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NF1Story of NF

Story of NF: Caitlin R.

I was diagnosed at age four years old. I was not walking yet, so my…
Four people wearing green shirts hold "Make NF Visible" signs, standing in a room with photos and text on the walls.
Awards & GrantsFeaturedFeatured EUNF2-SWN

Making NF Visible in Germany

The Children’s Tumor Foundation is proud to provide funding to Lars Björn Riecken, PhD, and…
Children's Tumor Foundation logo with the text "Ending NF Through Research" and "Cure NF with Jack" next to a four-leaf clover on a blue background.
Collaborations & PartnershipsFeatured EUNF1Press ReleaseScience & ResearchTop Story

Children’s Tumor Foundation and CureNFwithJack Announce Next Phase of the Groundbreaking Biomarker Project for NF1 Tumor Detection

Collaboration Accelerates the Development of a Non-Invasive Blood Test to Identify and Track Cancerous Tumors…
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NF2-SWNStory of NF

Story of NF: Abbi E.

I was diagnosed with NF2-related schwannomatosis entirely incidentally at age 16. I went to my…