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Two people seated on stage in discussion during the "Fireside Chat with Innovative Health Initiative" at a Children's Tumor Foundation Europe event. A screen behind them displays the event title.
FeaturedGlobalNF ConferencePress ReleaseScience & ResearchTop Story EU

Children’s Tumor Foundation Europe Leads Collective Effort in Accelerating Therapeutics and Innovation for Rare Diseases

Gathering in Brussels for a week, a diverse group of leading experts from across the…
Text on a plain background reads: "MAKE NF RESEARCH VISIBLE" and "WHY JOIN THE NF FIELD?" in blue and green letters.
Science & ResearchVideo

Young Researchers and Clinicians: Join the NF Field

The field of neurofibromatosis and schwannomatosis research and clinical care offers a rich tapestry of…
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NF2-SWNStory of NF

Stories of NF: Rozalinda H

I was diagnosed with NF2-SWN nine months ago (21 years old) last summer, on July…
Collaborations & PartnershipsNF1Outside Opportunities

Funding Opportunity: 2025 Francis S. Collins Scholars

The Francis S. Collins Scholars Program in Neurofibromatosis Clinical and Translational Research is designed to…
Opening Address slide featuring Nathalie Moll, Director General, EFPIA - European Federation of Pharmaceutical Industries and Associations, with a globe and abstract light design background.
Featured EUGlobalPharma

Nathalie Moll, Director General of EFPIA, Delivered the Opening Address at the Global NF Conference

"The community that looks after rare diseases, whether it’s scientists, patient communities, or industries, are…
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Awards & GrantsScience & Research

Children’s Tumor Foundation Names Rosalie Ferner, MD, 2024 Friedrich von Recklinghausen Award Winner

The Friedrich von Recklinghausen Award: Neurofibromatosis Tradition and Progress The Children’s Tumor Foundation’s (CTF) Friedrich…
Graphical abstract from The New England Journal of Medicine showing the effects of Brigatinib in NF2-related Schwannomatosis, indicating a decrease in tumor volume for various target tumors.
Collaborations & PartnershipsNF2-SWNPress ReleasePublicationsScience & ResearchTop StoryTop Story EU

Brigatinib Shows Promise for NF2-SWN: A Direct Result of CTF’s Synodos Initiative

A landmark study published in the New England Journal of Medicine has revealed promising results…
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CTF in the NewsFeaturedFeatured EU

CEO Annette Bakker Opinion Piece Published in Chicago Tribune

The Chicago Tribune published Children's Tumor Foundation CEO Annette Bakker's most recent editorial on patient…
A close-up of a smiling person wearing star and moon-shaped earrings, with a light-colored background.
NF1Story of NF

Stories of NF: Shy

I was diagnosed (with NF1) at seven years old while undergoing an allergy test. I…
A woman in a beige top and black blazer is sitting at a table with a white tablecloth, engaged in conversation. There are glasses of water and a black handbag on the table. Photo date is November 1, 2009.
AwarenessScience & Research

Women Researchers in NF – Meena Upadhyaya

My Reflections on NF1 Meena Upadhyaya, OBE, FRCPath, FLSW, Medical Geneticist and Professor Emerita, Cardiff…
A man in a dark suit and a woman in a blue dress pose together in front of a blue backdrop with "END NF" and "Children's Tumor Foundation" logos.
AwarenessScience & Research

Women Researchers in NF – Peggy Wallace

The Wallace Journey in NF Research Margaret "Peggy" Wallace, PhD, Professor, University of Florida Discover…
A woman with long blonde hair smiles at the camera. She is wearing a light-colored cardigan and a black top. The background shows shelves with various items.
AwarenessScience & Research

Women Researchers in NF – Corina Anastasaki

Thoughts After a Dozen Years of Brain Research in Neurofibromatosis Type 1 (NF1) Corina Anastasaki,…