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The latest news, stories, and updates from the Children's Tumor Foundation.

 

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Children's Tumor Foundation logo with the text "Ending NF Through Research" and "Cure NF with Jack" next to a four-leaf clover on a blue background.
Collaborations & PartnershipsFeatured EUNF1Press ReleaseScience & ResearchTop Story

Children’s Tumor Foundation and CureNFwithJack Announce Next Phase of the Groundbreaking Biomarker Project for NF1 Tumor Detection

Collaboration Accelerates the Development of a Non-Invasive Blood Test to Identify and Track Cancerous Tumors…
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NF2-SWNStory of NF

Story of NF: Abbi E.

I was diagnosed with NF2-related schwannomatosis entirely incidentally at age 16. I went to my…
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Awards & GrantsFeaturedFeatured EU

CTF Clinical Research Awards

At the Children's Tumor Foundation (CTF), our commitment to advancing neurofibromatosis and schwannomatosis (NF) research…
Five people are shown under the title "2024 Drug Discovery Initiative Awardees" on a colorful background.
Awards & GrantsFeaturedFeatured EU

2024 Drug Discovery Initiative Awardees

The Children’s Tumor Foundation is pleased to announce a significant investment of more than $995,000…
Person smiling in front of a blue background with the text "give ctf.org Children's Tumor Foundation" to the right.
Collaborations & PartnershipsFeaturedNF1Story of NF

Give for a Fighting Chance: Lashonda’s Story and the Promise of Biomarker Research

For Lashonda, neurofibromatosis type 1 (NF1) is more than a diagnosis—it’s her family’s legacy. Born…
A person smiles against a blue background with the Children's Tumor Foundation logo.
AdvocacyFeaturedPharmaStory of NFVideo

Give for Treatment Options: Lilly’s Advocacy for Cutaneous Neurofibroma Treatments

Lilly has always dreamed big. Growing up in New York, she wanted to be everything—a…
Collaborations & PartnershipsCTF in the NewsFeaturedFeatured EUNF2-SWNPublicationsScience & Research

From Discovery to Impact: How Collaboration Unlocked Brigatinib for NF2-Related Schwannomatosis

A pivotal chapter in the story of drug discovery for NF2-related schwannomatosis has been written…
A person in a lab coat stands in a laboratory filled with shelves of bottles and equipment.
Collaborations & PartnershipsFeaturedFeatured EUNF2-SWNPress ReleaseScience & Research

New Meningioma model in development in CTF Preclinical Hub Unlocks Opportunities for NF2-SWN Brain Tumor Therapies

Funding from the Children’s Tumor Foundation enables University of Plymouth researchers to pioneer a humanized…
A woman with a facial difference, wearing a pink floral shirt, is in front of a blue background with "give" and "Children’s Tumor Foundation" text and a heart symbol.
FeaturedNF1PharmaStory of NFVideo

Give for Tomorrow: Marcia’s Story and the Promise of More Treatments

Marcia Miller’s story is a testament to resilience, advocacy, and enduring hope for better treatments…
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FeaturedFundraiser

The beNeFit 2024

The 2024 beNeFit gala, NF Forward’s signature event, took place on November 23 at Huntington…
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Uncategorized

2025 DWOS NWA Star: Tiffany Benitez

Tiffany is a seasoned technology leader with 23 years of experience across multiple industries, including…
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Uncategorized

2025 DWOS NWA Star: Luke O’Gary

Luke O’Gary, a native of Chisago City, Minnesota, moved to Little Rock in the fall…