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The latest news, stories, and updates from the Children's Tumor Foundation.

 

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FeaturedScience & Research

CTF-Hosted Lab Tour: Cincinnati Children’s Hospital

The Children’s Tumor Foundation was proud to host a group of patients and families affected…
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NF1Story of NF

Story of NF: Catherine K.

When I was born, something wasn’t right with my eyes. One was basically closed shut;…
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GlobalNF Conference

Patient Day at the Global NF Conference

As part of the 2024 Global NF Conference, the Children’s Tumor Foundation hosted its second…
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Awards & GrantsFeaturedFeatured EUNF1Science & Research

Young Investigator: Q&A with Sarah Morrow about NF1 and MPNST

The Young Investigator Award (YIA) provides two-year salary support to early-career NF researchers to help…
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AdvocacyFeaturedFeatured EU

Children’s Tumor Foundation Chair Pens Message Urging Restoration of NF Research Funding

In an op-ed published in RealClearHealth, Gabriel Groisman, Chair of the Children's Tumor Foundation, calls…
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AdvocacyFeatured

Standing Strong for NF Research and How You Can Help

March 26, 2025 Update:  Dear Friends, I’m reaching out about the federal NF research funding…
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NF2-SWNStory of NF

Story of NF: Anisha R.

I was diagnosed at the age of 26 in 2022. I experienced extraordinary NF2-SWN effects…
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Awareness

2025 Shine a Light Locations

Shine a Light on NF brings NF awareness into the community by lighting up buildings,…
A person stands with arms crossed next to text announcing their joining CureAge Therapeutics from the Children's Tumor Foundation. Logos of both organizations are displayed.
Collaborations & PartnershipsGlobalPress Release

Children’s Tumor Foundation’s Montse Montaner Joins CureAge Therapeutics

Seasoned international advisor will serve on the board of CureAge Therapeutics The Children's Tumor Foundation…
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CTF in the NewsPharma

Children’s Tumor Foundation Featured in Two-Part Series in BioSpace on Reviving Abandoned Drugs for Rare Disease Treatments

The Children's Tumor Foundation (CTF) is spotlighted in two parts in the life science publication…
Children's Tumor Foundation logo on the left and Rare Disease Day logo with February 28 date on the right.
AdvocacyAwarenessFeaturedFeatured EUPharma

From NF to the World: Rare Disease Day and the Race for Faster Treatments

This has been a February to remember! In just a few weeks, a new drug…
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NF1Story of NF

Story of NF: Jonah S.

I was diagnosed at birth. Unidentified Bright Spots were found during an MRI when I…