We know that receiving a diagnosis of NF can be overwhelming and a lot to digest all at once. What is most important to understand is that you are not alone.
Newly Diagnosed?
Get the Facts
We know that receiving a diagnosis of NF can be overwhelming and a lot to digest all at once. What is most important to understand is that you are not alone.
Learn more about the type of NF that affects you or your loved one by visiting these dedicated pages:
- neurofibromatosis type 1 (NF1)
- NF2-related schwannomatosis (NF2-SWN), formerly known as neurofibromatosis type 2
- schwannomatosis (SWN)
Download one of our NF Fact Sheets, Infographics, or brochures below (additional resources and languages available in the Resource Library).
Find a Doctor
We understand how difficult it is to find healthcare professionals who have experience diagnosing and caring for NF patients. We are constantly working to expand our NF Clinic Network and add to the list of NF professionals available across the country.
Find a DoctorAsk Questions
Ask Kate! is a YouTube series to answer your questions about neurofibromatosis. Kate Kelts, RN, BSN is the Patient Support Coordinator for the Children’s Tumor Foundation, and answers questions submitted directly to her by the NF community. Please leave your questions for Kate in the YouTube comments, or email Kate at KKelts@ctf.org.
View Ask Kate! Playlist
Click here to subscribe to CTF’s YouTube channel (and click the bell!) to receive alerts when Kate posts a new video.
Get Involved
National programs like Shine a Light NF Walk, NF Endurance, and Cupid’s Undie Run are great ways to empower yourself and your community in the fight for treatments and a cure for NF. It is also a way to meet others in your local NF community.
Learn More
Join the NF Registry
Research is the key to diagnosing and treating NF. And the NF Registry is the key to research. If you have been diagnosed with any form of neurofibromatosis (including NF1, NF2-SWN, and SWN), or if your child has NF, unite with thousands of others with NF and join the NF Registry today.
When you sign up for the NF Registry, you can learn about and participate in advanced scientific research on all forms of NF. There are many more benefits to joining the Registry, simply visit the page in the link below.
Learn More
NF Summit
Connect with other NF patients and families, get support, and learn from NF experts at our annual NF Summit or at one of many NF symposiums held around the country.
Learn More
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