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June 19-21, 2025
Washington, DC

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Connecting the NF Community: 2025 NF Summit

The Children’s Tumor Foundation’s 4th annual patient and family conference, the NF Summit 2025 will take place at the Omni Shoreham in Washington, DC from Thursday, June 19 to Saturday, June 21, 2025.

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About the NF Summit

The Children’s Tumor Foundation’s annual patient and family conference, the NF Summit, brings together NF patients and families, volunteers, event organizers, researchers, clinicians, patient advocates, friends, and supporters; all who have a connection to neurofibromatosis or schwannomatosis. Whether you come for education, empowerment, networking, or as a way to connect with others on a similar journey, you will leave with a renewed understanding and a refreshed motivation to End NF.

No matter your life stage or where you are along your NF journey, you will find content relevant to your individual situation.

NF Summit Video

NF Summit Playlists

Banner displaying "Welcome to NF Summit 2024" with a blue and green gradient background and the event's logo at the bottom right corner.

NF Summit 2024

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NF Summit 2023

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NF Summit 2022

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NF Forum 2021

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2024 Sponsor List

Presenting Sponsor

Accelerator Sponsor

Advocate Sponsor

Friend of the Summit

Scholarship Sponsor

Testimonials

“

I was really nervous & excited coming to this summit as it was my first one. It did not disappoint. I was empowered & motivated to make a difference for myself & others with NF. I found the summit to be very informative. There are new & different possibilities now & I was able to make friendships that will last a lifetime. I finally feel like I can get the care I will need going forward. Thank you for providing this opportunity & all your hard work and dedication did not go unnoticed.

First-time attendee.
“

The sessions were engaging and on-point - a nice blend of education/information and human experience/storytelling. The speakers were equally excellent and connected well with the audience.

Return Attendee
“

I learned so much at this event that I thought I had a good handle on. Now, I feel more prepared to care for my son. Educate his medical teams and educators but also feel less helpless.

Return Attendee