The Children’s Tumor Foundation annual NF Conference is the most important yearly gathering of the NF research and clinical communities, all focused on improving outcomes for patients with neurofibromatosis type 1 (NF1), and all types of schwannomatosis (SWN), including NF2-related schwannomatosis (NF2-SWN) formerly referred to as neurofibromatosis type 2. The NF Conference is a global event, attracting participants worldwide across a wide range of scientific disciplines from research and clinical backgrounds. The event is a critical forum for consensus building and advancing basic, translational, and clinical research in NF and related fields, while fostering collaborations within and beyond the NF community.
Conferences & Education
The Children's Tumor Foundation is dedicated to continued discovery and education for NF healthcare professionals.
NF ConferenceINFER (International NF Educational Resources)
INFER (International NF Educational Resources) is a series of online educational lectures for medical professionals by leading neurofibromatosis and schwannomatosis experts.
View upcoming topics/speakers, register, or watch recordings of past events at the link below.
More About INFER
INFER is an initiative of Children’s Tumor Foundation Europe, supported by an educational grant from AstraZeneca.
Virtual Case Conferences (VCCs)
CTF’s Virtual Case Conferences are a monthly series organized by the Clinical Care Advisory Board on challenging issues in the management and treatment of NF1 and SWN, including NF2-SWN. Members of the NF Clinic Network are invited to attend the Virtual Case Conferences. For more information, please contact info@ctf.org.
View upcoming topics/speakers, register, or watch recordings of past events below.
Professional Engagement
Clinical Viewpoints: A CME Lecture Series for NF1-PN
Please note that CME credit is only available during the live webinar.
Approved Children’s Tumor Foundation Educational Partner
Past Events & Workshops
- Sage Bionetworks: NF Data Portal Satellite Session
- NF2 and Schwannomatosis Workshop 2022
- Diagnostic Criteria Revisions
- 2021 Latin American NF Conference
NF Data Portal Satellite Sessions
During this 2024 NF Conference Satellite Session, attendees received hands-on instruction from Sage Bionetworks on requesting specific datasets and sending data to analysis platforms linked to the NF Data Portal. The Sage team presented case studies demonstrating how researchers can repurpose datasets. The NF Open Science Initiative (NF-OSI) aims to fast-track NF research by promoting open-science and data sharing. This initiative is a collaborative effort among various NF-oriented foundations, programs, clinicians, and researchers.
NF2 and Schwannomatosis Workshop 2022
From Target to Drug to Clinic: On April 14, 2022, the Children’s Tumor Foundation hosted a full-day virtual workshop with expert clinicians, surgeons, researchers, and pharma representatives as we assess the current landscape of care, biology, and drug discovery for these rare disorders.
Diagnostic Criteria Revisions
In June of 2018, The Children’s Tumor Foundation convened a group of 32 international experts in NYC at the Memorial Sloan Kettering Cancer Center to review and propose revisions to the diagnostic criteria of the neurofibromatoses, which had not been updated since NIH Consensus Conference in 1987. The goal of this workshop was to accurately and clearly delineate the conditions known at that time as NF1, NF2 and schwannomatosis, representing the best consensus among NF experts, to improve diagnostic accuracy. The final revisions were included by an expanded group of stakeholders, and incorporated input from patients, families and foundations, and other medical specialists, in addition to the original working group. The intent is for the new criteria to be usable, not just for NF specialists, but for all general practitioners.
To view the revised diagnostic criteria, Click Here
2021 Latin American NF Conference
In 2021, the Children’s Tumor Foundation and the GENES Foundation collaborated to present the Latin American NF Conference 2021, a virtual, full-day conference of live presentations in Spanish and English.
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