Location:    Flexible/ Remote, Full-time

Department: Scientific/Research/Clinical

Reports to: Director Preclinical Initiatives

Wage Category: Exempt

The Children’s Tumor Foundation (CTF) is the drug discovery engine for NF, a group of genetic conditions that cause tumors to grow on nerves. By bringing together patients, doctors, scientists, and  pharma, CTF drives treatments, advances care, and delivers faster results for millions affected by NF. NF refers to all types of neurofibromatosis and schwannomatosis, which collectively affect 1 in every 2,000 individuals.

General Summary 

CTF is  seeking a passionate and dedicated Data Science Postdoctoral Researcher to join our non-profit organization focused on advancing research in Neurofibromatosis (NF). This role involves working closely with key stakeholders to manage and analyze data, develop research strategies, and contribute to publications and open-source resources. The Data Science Researcher will be a self-starter with strong technical skills in data management, analysis, and visualization, with strong writing skills along with a passion for driving research in the NF space.

Principal Duties and Responsibilities

Data Management: Collaborate with our data vendors to ensure timely submission of data sharing plans, track data milestones, and verify the accuracy and accessibility of shared data through the portal.

Data Analysis and Visualization: Perform in-depth analysis and create visualizations of our funded data sets as well as publicly available data to derive actionable insights that inform research recommendations.

Collaboration with Researchers and Vendors: Partner with NF researchers and external vendors to interpret pre-clinical and clinical data findings and develop strategies that advance the NF.

Research Publications: Represent CTF and collaborate with Key Opinion Leaders (KOLs) to author and co-author publications in peer-reviewed journals. Present research findings at relevant conferences.

Data Curation and Quality: Identify new data sources, curate datasets, and ensure data quality and integrity for use in various research projects.

Open-Source Tool Development: Contribute to the creation and enhancement of biomedical open-source tools and resources for the NF data science community, including both academic institutions and pharmaceutical partners.

Additional duties as required.

Minimum Qualifications

Ph.D. Computational Biology, Bioinformatics, or a related field preferably oncology or NF.

1-2 years experience in experience working with public datasets and large-scale data repositories.

Python and R experience or similar coding experience.

Strong expertise in biomedical data management, analysis, and especially visualization techniques.

Proven track record of scientific publications and presentations.

Familiarity with open-source tool development and collaborative research environments.

Ability to work both independently and within a multidisciplinary team.

Excellent communication and organizational skills.

Ability to adapt to new technology.

Strong organizational skills are needed, which reflect the ability to manage and prioritize multiple tasks seamlessly with precise attention to detail.

Creative and analytical thinker.

Exceptional communication skills, including verbal and written.

This is an exciting opportunity to play a pivotal role in advancing NF research and contributing to the development of innovative tools that will support the broader scientific community.

Working Conditions, Equipment Used, and Special Information

Must have unimpeachable integrity and trustworthiness and possess remarkable tact, discretion, and professionalism.  Verbal and written communication skills will be used daily.  Maintains effectiveness under pressure.  Ability to lift 25 lbs.  Flexible for overnight business travel.  Flexible to work evenings and weekends as needed.

Equal Employment Opportunity

CTF and Insperity provide equal employment opportunities to all employees and applicants in all Foundation facilities without regard to race, color, religious creed, sex, national origin, ancestry, citizenship status, pregnancy, childbirth, (or related medical conditions, including, but not limited to lactation), physical disability, mental and intellectual disability, age, military status or status as a Vietnam-era or special disabled veteran, marital status, registered domestic partner or civil union status, gender (including sex stereotyping and gender identity or expression), medical condition (including, but not limited to, cancer-related or HIV/AIDS-related), genetic information, or sexual orientation under applicable federal, state and local laws. This policy applies to all terms and conditions of employment, including, but not limited to, hiring, placement, promotion, termination, layoff, recall, transfer, leaves of absence, compensation, and training.

 

Please send resumes to Jennifer Ching, Human Resources Director at jching@ctf.org.

Department: Development
Reports to: Senior Director, Development
Location: Remote

Summary: Responsible for managing and implementing Shine A Light NF Walks in communities nationally to achieve and exceed revenue goals in support of CTF’s mission.

Responsibilities

Implement organizational best practices with regard to recruiting and managing high level volunteers, active team management, sponsorship, expense and fiscal controls, marketing/promotions, logistics and risk management resulting in revenue growth and achievement of Shine A Light NF Walk budget goal.

Provide input into the development of a strategic plan for the fundraising campaign(s), including: reviewing, creating/enhancing and implementing best practices for achieving fundraising goals; budget recommendations; active team management; volunteer engagement; event planning; marketing/communications; and timelines.

Manage and own annual budget for assigned Shine A Light NF Walk.

Evaluate the effectiveness of the ongoing Walk events, including: fundraising efficiency (cost/expense), community engagement, event satisfaction, overall success of the event, and suggest improvements.

Ensure overall Development revenue goal is attained by collaborating with Donor Relations and Volunteer Engagement staff to identify, recruit, cultivate and steward volunteers, fundraising participants, and donors through the Shine A Light Walks.
Develop positive volunteer interactions through recruitment and mentoring, and provide comprehensive support for Walk Directors and participants to develop and achieve personal fundraising plans, while focusing on the mission of CTF.

Collaborate with local volunteers to identify and network with corporations, community groups, schools, and key donors to engage their support of CTF fundraising campaigns.

Ensure an Event Day plan is in place with Walk Key Volunteers, including: overseeing registration, cash handling, venue set up,  and the implementation of the Walk program and activities to ensure satisfaction of participants and resolution of problems.

Partner with the Senior Director of Development on the development and implementation of a comprehensive incentives strategy, including participant communications plan and fulfillment.

Maintain communications timeline and ensure website calendar of events is current.

Maintain a working knowledge of CTF’s mission and the capability to educate others on our goals, in order to promote fundraising, research, and patient initiatives.

Perform other duties as assigned.

Education and Experience

Bachelor’s degree required preferably in Business, Nonprofit Management or related subject.

Minimum of 4 years experience with national nonprofit event-based peer to peer fundraising or managing a portfolio of $800,000 or more.

Minimum 4 years experience managing leadership volunteers and committees.

Position Requirements

Excellent oral and written communication skills.

Enthusiastic, self-motivated, resourceful and committed to excellence.

Experience giving presentations to multiple audiences.

Demonstrated knowledge and use of digital,  social media & emerging online channels.

Capable of balancing multiple priorities effectively and meeting deadlines.

Highly organized with strong attention to detail.

Customer service driven approach.

Demonstrates the ability to learn new systems, processes, and ways of working in a fast-paced, dynamic, team-based environment.

Knowledge of Google Workspace, Salesforce and Classy.

Physical Demands & Work Environment

Required to attend Walk events and work evenings and weekends as needed.

Extensive travel required.

Light lifting and some physical activity may be required.

Equal Employment Opportunity

CTF and Insperity provide equal employment opportunities to all employees and applicants in all Foundation facilities without regard to race, color, religious creed, sex, national origin, ancestry, citizenship status, pregnancy, childbirth, (or related medical conditions, including, but not limited to lactation), physical disability, mental and/or intellectual disability, age, military status or status as a Vietnam-era or special disabled veteran, marital status, registered domestic partner or civil union status, gender (including sex stereotyping and gender identity or expression), medical condition (including, but not limited to, cancer related or HIV/AIDS related), genetic information, or sexual orientation in accordance with applicable federal, state and local laws. This policy applies to all terms and conditions of employment, including, but not limited to, hiring, placement, promotion, termination, layoff, recall, transfer, leaves of absence, compensation and training.

Apply
Please send your resume to Jennifer Ching, Director of Human Resources  at  jching@ctf.org.