Understanding NF2-SWN Comic (Spanish)
Understanding NF2-SWN is an eight-page educational comic book that tells the true story of Billy who was diagnosed with NF2-related schwannomatosis at the age of six. The story tracks Billy’s childhood struggle to understand his diagnosis and navigate this difficult condition. This version has been translated into Spanish.
Understanding NF2-SWN is an eight-page educational comic book that tells...
Understanding NF2-SWN is an eight-page educational comic book that tells the true story of Billy who was diagnosed with NF2-related schwannomatosis at the age of six. The story tracks Billy’s...
Webinars on NF2-SWN Hearing Loss
The Children’s Tumor Foundation has sponsored a number of helpful webinars and panels to help patients living with NF2-SWN understand the latest in communication technology and cope with hearing loss.
The Children’s Tumor Foundation has sponsored a number of helpful...
The Children’s Tumor Foundation has sponsored a number of helpful webinars and panels to help patients living with NF2-SWN understand the latest in communication technology and cope with hearing loss.
What is a Clinical Trial
A printable resource for those in the NF community seeking information about clinical trials and the factors to be considered before participating in a clinical trial.
A printable resource for those in the NF community seeking...
A printable resource for those in the NF community seeking information about clinical trials and the factors to be considered before participating in a clinical trial.
What is a Clinical Trial (Spanish)
A Spanish translation of our printable resource for those in the NF community seeking information about clinical trials and the factors to be considered before participating in a clinical trial.
A Spanish translation of our printable resource for those in...
A Spanish translation of our printable resource for those in the NF community seeking information about clinical trials and the factors to be considered before participating in a clinical trial.
2021 NF1 Diagnostic Criteria Update
A summary of the 2021 diagnostic criteria update for neurofibromatosis type 1 (NF1).
A summary of the 2021 diagnostic criteria update for neurofibromatosis...
A summary of the 2021 diagnostic criteria update for neurofibromatosis type 1 (NF1).
2021 NF1 Diagnostic Criteria Update (Spanish)
A Spanish summary of the 2021 diagnostic criteria update for neurofibromatosis type 1.
A Spanish summary of the 2021 diagnostic criteria update for...
A Spanish summary of the 2021 diagnostic criteria update for neurofibromatosis type 1.
2022 Diagnostic Criteria Update Summary
A summary of the diagnostic criteria for all types of schwannomatosis, including NF2-related schwannomatosis. Prior to this 2022 update, these conditions were referred to as schwannomatosis and neurofibromatosis type 2.
A summary of the diagnostic criteria for all types of...
A summary of the diagnostic criteria for all types of schwannomatosis, including NF2-related schwannomatosis. Prior to this 2022 update, these conditions were referred to as schwannomatosis and neurofibromatosis type 2.
Archie Comics’ Sounds Like Music
Meet Grace, the first member of the Archie Comics universe living with NF2-related schwannomatosis (NF2-SWN), formerly called neurofibromatosis type 2.
Meet Grace, the first member of the Archie Comics universe...
Meet Grace, the first member of the Archie Comics universe living with NF2-related schwannomatosis (NF2-SWN), formerly called neurofibromatosis type 2.
Café Au Lait – Children’s Picture Book
Available for purchase at the CTF Store, this 36-page picture book tells the story of Enzo and his story about café au lait spots.
Available for purchase at the CTF Store, this 36-page picture...
Available for purchase at the CTF Store, this 36-page picture book tells the story of Enzo and his story about café au lait spots.
Diagnosed with NF1
An informative booklet for patients diagnosed with neurofibromatosis type 1 (NF1).
An informative booklet for patients diagnosed with neurofibromatosis type 1...
An informative booklet for patients diagnosed with neurofibromatosis type 1 (NF1).
