Patient Engagement
A trifold brochure about CTF's Patient Engagement program, which trains patients to take an active part in neurofibromatosis and schwannomatosis research.
A trifold brochure about CTF's Patient Engagement program, which trains...
A trifold brochure about CTF's Patient Engagement program, which trains patients to take an active part in neurofibromatosis and schwannomatosis research.
Schwannomatosis Fact Sheet (Spanish)
A Spanish translation of CTF's one-page fact sheet about the conditions that fall under the umbrella term schwannomatosis, or SWN.
A Spanish translation of CTF's one-page fact sheet about the...
A Spanish translation of CTF's one-page fact sheet about the conditions that fall under the umbrella term schwannomatosis, or SWN.
Super Emerson (English)
Super Emerson is a children’s book that introduces neurofibromatosis type 1 (NF1) through the story of a young child with the condition. It can be used on its own or along with the parent resource, Talking to Your Child About NF1, designed to complement it.
Super Emerson is a children’s book that introduces neurofibromatosis type...
Super Emerson is a children’s book that introduces neurofibromatosis type 1 (NF1) through the story of a young child with the condition. It can be used on its own or...
Super Emerson (French)
Super Emerson (French translation) is a children’s book that introduces neurofibromatosis type 1 (NF1) through the story of a young child with the condition. It can be used on its own or along with the parent resource, Talking to Your Child About NF1, designed to complement it.
Super Emerson (French translation) is a children’s book that introduces...
Super Emerson (French translation) is a children’s book that introduces neurofibromatosis type 1 (NF1) through the story of a young child with the condition. It can be used on its...
Super Emerson (Spanish)
Super Emerson (Spanish translation) is a children’s book that introduces neurofibromatosis type 1 (NF1) through the story of a young child with the condition. It can be used on its own or along with the parent resource, Talking to Your Child About NF1, designed to complement it.
Super Emerson (Spanish translation) is a children’s book that introduces...
Super Emerson (Spanish translation) is a children’s book that introduces neurofibromatosis type 1 (NF1) through the story of a young child with the condition. It can be used on its...
Talking to Your Child About NF1 (English)
Talking to Your Child About NF1 is a comprehensive guide that helps caregivers decide what and how to share a diagnosis of neurofibromatosis type 1 (NF1) with their child. It can be used on its own or together with the children's resource, Super Emerson, designed to complement it.
Talking to Your Child About NF1 is a comprehensive guide...
Talking to Your Child About NF1 is a comprehensive guide that helps caregivers decide what and how to share a diagnosis of neurofibromatosis type 1 (NF1) with their child. It...
Talking to Your Child About NF1 (French)
Talking to Your Child About NF1 (French translation) is a comprehensive guide that helps caregivers decide what and how to share a diagnosis of neurofibromatosis type 1 (NF1) with their child. It can be used on its own or together with the children's resource, Super Emerson, designed to complement it.
Talking to Your Child About NF1 (French translation) is a...
Talking to Your Child About NF1 (French translation) is a comprehensive guide that helps caregivers decide what and how to share a diagnosis of neurofibromatosis type 1 (NF1) with their...
Talking to Your Child About NF1 (Spanish)
Talking to Your Child About NF1 (Spanish translation) is a comprehensive guide that helps caregivers decide what and how to share a diagnosis of neurofibromatosis type 1 (NF1) with their child. It can be used on its own or together with the children's resource, Super Emerson, designed to complement it.
Talking to Your Child About NF1 (Spanish translation) is a...
Talking to Your Child About NF1 (Spanish translation) is a comprehensive guide that helps caregivers decide what and how to share a diagnosis of neurofibromatosis type 1 (NF1) with their...
Talking With Your Pediatrician
This chapter from CTF's NF Parent Guidebook offers tips to parents when speaking with a child's pediatrician.
This chapter from CTF's NF Parent Guidebook offers tips to...
This chapter from CTF's NF Parent Guidebook offers tips to parents when speaking with a child's pediatrician.
Understanding NF2-SWN Comic
Understanding NF2-SWN is an eight-page educational comic book that tells the true story of Billy Nguyen, who was diagnosed with NF2-related schwannomatosis at the age of six. The story tracks Billy’s childhood struggle to understand his diagnosis and navigate tumors and progressive hearing loss.
Understanding NF2-SWN is an eight-page educational comic book that tells...
Understanding NF2-SWN is an eight-page educational comic book that tells the true story of Billy Nguyen, who was diagnosed with NF2-related schwannomatosis at the age of six. The story tracks...
