Talking to Your Child About NF1 (Spanish)
Talking to Your Child About NF1 (Spanish translation) is a comprehensive guide that helps caregivers decide what and how to share a diagnosis of neurofibromatosis type 1 (NF1) with their child. It can be used on its own or together with the children's resource, Super Emerson, designed to complement it.
Talking to Your Child About NF1 (Spanish translation) is a...
Talking to Your Child About NF1 (Spanish translation) is a comprehensive guide that helps caregivers decide what and how to share a diagnosis of neurofibromatosis type 1 (NF1) with their...
Talking With Your Pediatrician
This chapter from CTF's NF Parent Guidebook offers tips to parents when speaking with a child's pediatrician.
This chapter from CTF's NF Parent Guidebook offers tips to...
This chapter from CTF's NF Parent Guidebook offers tips to parents when speaking with a child's pediatrician.
Understanding NF2-SWN Comic
Understanding NF2-SWN is an eight-page educational comic book that tells the true story of Billy Nguyen, who was diagnosed with NF2-related schwannomatosis at the age of six. The story tracks Billy’s childhood struggle to understand his diagnosis and navigate tumors and progressive hearing loss.
Understanding NF2-SWN is an eight-page educational comic book that tells...
Understanding NF2-SWN is an eight-page educational comic book that tells the true story of Billy Nguyen, who was diagnosed with NF2-related schwannomatosis at the age of six. The story tracks...
Understanding NF2-SWN Comic (Spanish)
Understanding NF2-SWN is an eight-page educational comic book that tells the true story of Billy who was diagnosed with NF2-related schwannomatosis at the age of six. The story tracks Billy’s childhood struggle to understand his diagnosis and navigate this difficult condition. This version has been translated into Spanish.
Understanding NF2-SWN is an eight-page educational comic book that tells...
Understanding NF2-SWN is an eight-page educational comic book that tells the true story of Billy who was diagnosed with NF2-related schwannomatosis at the age of six. The story tracks Billy’s...
Webinars on NF2-SWN Hearing Loss
The Children’s Tumor Foundation has sponsored a number of helpful webinars and panels to help patients living with NF2-SWN understand the latest in communication technology and cope with hearing loss.
The Children’s Tumor Foundation has sponsored a number of helpful...
The Children’s Tumor Foundation has sponsored a number of helpful webinars and panels to help patients living with NF2-SWN understand the latest in communication technology and cope with hearing loss.
What is a Clinical Trial
A printable resource for those in the NF community seeking information about clinical trials and the factors to be considered before participating in a clinical trial.
A printable resource for those in the NF community seeking...
A printable resource for those in the NF community seeking information about clinical trials and the factors to be considered before participating in a clinical trial.
What is a Clinical Trial (Spanish)
A Spanish translation of our printable resource for those in the NF community seeking information about clinical trials and the factors to be considered before participating in a clinical trial.
A Spanish translation of our printable resource for those in...
A Spanish translation of our printable resource for those in the NF community seeking information about clinical trials and the factors to be considered before participating in a clinical trial.
2021 NF1 Diagnostic Criteria Update
A summary of the 2021 diagnostic criteria update for neurofibromatosis type 1 (NF1).
A summary of the 2021 diagnostic criteria update for neurofibromatosis...
A summary of the 2021 diagnostic criteria update for neurofibromatosis type 1 (NF1).
2021 NF1 Diagnostic Criteria Update (Spanish)
A Spanish summary of the 2021 diagnostic criteria update for neurofibromatosis type 1.
A Spanish summary of the 2021 diagnostic criteria update for...
A Spanish summary of the 2021 diagnostic criteria update for neurofibromatosis type 1.
2022 Diagnostic Criteria Update Summary
A summary of the diagnostic criteria for all types of schwannomatosis, including NF2-related schwannomatosis. Prior to this 2022 update, these conditions were referred to as schwannomatosis and neurofibromatosis type 2.
A summary of the diagnostic criteria for all types of...
A summary of the diagnostic criteria for all types of schwannomatosis, including NF2-related schwannomatosis. Prior to this 2022 update, these conditions were referred to as schwannomatosis and neurofibromatosis type 2.
