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NF1 Plexiform Neurofibromas (Spanish)

Description

A resource in Spanish for individuals with neurofibromatosis type 1 (NF1) who are suspected or confirmed to have a plexiform neurofibroma.

A resource in Spanish for individuals with neurofibromatosis type 1...

NF2-SWN Fact Sheet

Description

A summary of important facts about NF2-related schwannomatosis (NF2-SWN).

Listing Tags

A summary of important facts about NF2-related schwannomatosis (NF2-SWN).

NF2-SWN Fact Sheet (Spanish)

Description

A Spanish translation of CTF's important facts about NF2-related schwannomatosis (NF2-SWN).

Listing Tags

A Spanish translation of CTF's important facts about NF2-related schwannomatosis...

Patient Engagement

Description

A trifold brochure about CTF's Patient Engagement program, which trains patients to take an active part in neurofibromatosis and schwannomatosis research.

A trifold brochure about CTF's Patient Engagement program, which trains...

Schwannomatosis Fact Sheet (Spanish)

Description

A Spanish translation of CTF's one-page fact sheet about the conditions that fall under the umbrella term schwannomatosis, or SWN.

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A Spanish translation of CTF's one-page fact sheet about the...

Super Emerson (English)

Description

Super Emerson is a children’s book that introduces neurofibromatosis type 1 (NF1) through the story of a young child with the condition. It can be used on its own or along with the parent resource, Talking to Your Child About NF1, designed to complement it.
 

Super Emerson is a children’s book that introduces neurofibromatosis type...

Super Emerson (French)

Description

Super Emerson (French translation) is a children’s book that introduces neurofibromatosis type 1 (NF1) through the story of a young child with the condition. It can be used on its own or along with the parent resource, Talking to Your Child About NF1, designed to complement it.
 

Super Emerson (French translation) is a children’s book that introduces...

Super Emerson (Spanish)

Description

Super Emerson (Spanish translation) is a children’s book that introduces neurofibromatosis type 1 (NF1) through the story of a young child with the condition. It can be used on its own or along with the parent resource, Talking to Your Child About NF1, designed to complement it.
 

Super Emerson (Spanish translation) is a children’s book that introduces...

Talking to Your Child About NF1 (English)

Description

Talking to Your Child About NF1 is a comprehensive guide that helps caregivers decide what and how to share a diagnosis of neurofibromatosis type 1 (NF1) with their child. It can be used on its own or together with the children's resource, Super Emerson, designed to complement it.

Talking to Your Child About NF1 is a comprehensive guide...

Talking to Your Child About NF1 (French)

Description

Talking to Your Child About NF1 (French translation) is a comprehensive guide that helps caregivers decide what and how to share a diagnosis of neurofibromatosis type 1 (NF1) with their child. It can be used on its own or together with the children's resource, Super Emerson, designed to complement it.

Talking to Your Child About NF1 (French translation) is a...