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NF1 Optic Pathway Gliomas (Spanish)

Description

A Spanish language resource for individuals with neurofibromatosis type 1 (NF1) who are suspected or confirmed to have an optic pathway glioma (OPG).

A Spanish language resource for individuals with neurofibromatosis type 1...

NF1 Plexiform Neurofibromas

Description

This resource is for individuals with neurofibromatosis type 1 (NF1) who are suspected or confirmed to have a plexiform neurofibroma.

This resource is for individuals with neurofibromatosis type 1 (NF1)...

NF1 Plexiform Neurofibromas (Spanish)

Description

A resource in Spanish for individuals with neurofibromatosis type 1 (NF1) who are suspected or confirmed to have a plexiform neurofibroma.

A resource in Spanish for individuals with neurofibromatosis type 1...

NF2-SWN Fact Sheet

Description

A summary of important facts about NF2-related schwannomatosis (NF2-SWN).

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A summary of important facts about NF2-related schwannomatosis (NF2-SWN).

NF2-SWN Fact Sheet (Spanish)

Description

A Spanish translation of CTF's important facts about NF2-related schwannomatosis (NF2-SWN).

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A Spanish translation of CTF's important facts about NF2-related schwannomatosis...

Patient Engagement

Description

A trifold brochure about CTF's Patient Engagement program, which trains patients to take an active part in neurofibromatosis and schwannomatosis research.

A trifold brochure about CTF's Patient Engagement program, which trains...

Schwannomatosis Fact Sheet (Spanish)

Description

A Spanish translation of CTF's one-page fact sheet about the conditions that fall under the umbrella term schwannomatosis, or SWN.

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A Spanish translation of CTF's one-page fact sheet about the...

Talking With Your Pediatrician

Description

This chapter from CTF's NF Parent Guidebook offers tips to parents when speaking with a child's pediatrician.

This chapter from CTF's NF Parent Guidebook offers tips to...

Understanding NF2-SWN Comic

Description

Understanding NF2-SWN is an eight-page educational comic book that tells the true story of Billy Nguyen, who was diagnosed with NF2-related schwannomatosis at the age of six. The story tracks Billy’s childhood struggle to understand his diagnosis and navigate tumors and progressive hearing loss.

Understanding NF2-SWN is an eight-page educational comic book that tells...

Understanding NF2-SWN Comic (Spanish)

Description

Understanding NF2-SWN is an eight-page educational comic book that tells the true story of Billy who was diagnosed with NF2-related schwannomatosis at the age of six. The story tracks Billy’s childhood struggle to understand his diagnosis and navigate this difficult condition. This version has been translated into Spanish.

Understanding NF2-SWN is an eight-page educational comic book that tells...