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FeaturedGlobalNF ConferencePress ReleaseScience & ResearchTop Story EU
Children’s Tumor Foundation Europe Leads Collective Effort in Accelerating Therapeutics and Innovation for Rare Diseases
Gathering in Brussels for a week, a diverse group of leading experts from across the…
Science & ResearchVideo
Young Researchers and Clinicians: Join the NF Field
The field of neurofibromatosis and schwannomatosis research and clinical care offers a rich tapestry of…
NF2-SWNStory of NF
Stories of NF: Rozalinda H
I was diagnosed with NF2-SWN nine months ago (21 years old) last summer, on July…
Collaborations & PartnershipsNF1Outside Opportunities
Funding Opportunity: 2025 Francis S. Collins Scholars
The Francis S. Collins Scholars Program in Neurofibromatosis Clinical and Translational Research is designed to…
Featured EUGlobalPharma
Nathalie Moll, Director General of EFPIA, Delivered the Opening Address at the Global NF Conference
"The community that looks after rare diseases, whether it’s scientists, patient communities, or industries, are…
Awards & GrantsScience & Research
Children’s Tumor Foundation Names Rosalie Ferner, MD, 2024 Friedrich von Recklinghausen Award Winner
The Friedrich von Recklinghausen Award: Neurofibromatosis Tradition and Progress The Children’s Tumor Foundation’s (CTF) Friedrich…
Collaborations & PartnershipsNF2-SWNPress ReleasePublicationsScience & ResearchTop StoryTop Story EU
Brigatinib Shows Promise for NF2-SWN: A Direct Result of CTF’s Synodos Initiative
A landmark study published in the New England Journal of Medicine has revealed promising results…
CTF in the NewsFeaturedFeatured EU
CEO Annette Bakker Opinion Piece Published in Chicago Tribune
The Chicago Tribune published Children's Tumor Foundation CEO Annette Bakker's most recent editorial on patient…
NF1Story of NF
Stories of NF: Shy
I was diagnosed (with NF1) at seven years old while undergoing an allergy test. I…
AwarenessScience & Research
Women Researchers in NF – Meena Upadhyaya
My Reflections on NF1 Meena Upadhyaya, OBE, FRCPath, FLSW, Medical Geneticist and Professor Emerita, Cardiff…
AwarenessScience & Research
Women Researchers in NF – Peggy Wallace
The Wallace Journey in NF Research Margaret "Peggy" Wallace, PhD, Professor, University of Florida Discover…
AwarenessScience & Research
Women Researchers in NF – Corina Anastasaki
Thoughts After a Dozen Years of Brain Research in Neurofibromatosis Type 1 (NF1) Corina Anastasaki,…