Customize Consent Preferences

We use cookies to help you navigate efficiently and perform certain functions. You will find detailed information about all cookies under each consent category below.

The cookies that are categorized as "Necessary" are stored on your browser as they are essential for enabling the basic functionalities of the site. ... 

Always Active

Necessary cookies are required to enable the basic features of this site, such as providing secure log-in or adjusting your consent preferences. These cookies do not store any personally identifiable data.

No cookies to display.

Functional cookies help perform certain functionalities like sharing the content of the website on social media platforms, collecting feedback, and other third-party features.

No cookies to display.

Analytical cookies are used to understand how visitors interact with the website. These cookies help provide information on metrics such as the number of visitors, bounce rate, traffic source, etc.

No cookies to display.

Performance cookies are used to understand and analyze the key performance indexes of the website which helps in delivering a better user experience for the visitors.

No cookies to display.

Advertisement cookies are used to provide visitors with customized advertisements based on the pages you visited previously and to analyze the effectiveness of the ad campaigns.

No cookies to display.

Skip to main content

Meet NF Champions Ken Janik and Erica Givens!

By December 22, 2014February 27th, 2024Awareness, NF1, Story of NF, Ways to Give

At this time of year, children all over the world search through catalogs, peer into store windows and compile a list of gifts they hope to receive during the holiday season. Bikes, dolls, chemistry kits and video games top the lists of so many children.

Our NF Heroes have additional hopes: less chemotherapy, fewer doctors’ appointments, reduced tumor size. At the Children’s Tumor Foundation, we are working relentlessly to fulfill that hope.

This holiday season, we asked some NF Heroes and Champions to share their story, their hope for the holidays, and thoughts for the coming year.

Ken Janik from Cheektowaga, NY and Erica Givens from Nashville, TN both live with NF2 and met through a Facebook support group. After emailing for a few months, they decided to attend the 2013 NF Forum and Nashville NF Walk and meet in person.

Ken was one of the top fundraisers for the Nashville NF Walk and Erica was the Captain of Team Givens, one of the top teams. They enjoyed getting to know one another, became a couple, and now both live in Nashville.

“We are very happy,” says Erica. “Our relationship formed partially because of the NF Forum and Nashville Walk. So thank you very much to CTF for helping bring us together!”

What is your hope for the holiday this year?

Erica: “All I hope for is to have a great holiday with my family for whom I feel blessed and thankful.”

Ken: “That NF will be cured soon.”

What is your idea of the perfect day?

Erica: “To be honest there is no perfect day. To be able to have a day with someone you love and always have something to smile about is good enough for me. I do my best to cherish every day even if it’s not a ‘perfect’ day.”

Ken: “The day a cure is found for NF.”

What are you most looking forward to next year?

Erica: “I am really looking forward to the cruise that Ken has planned to celebrate our anniversary.”

Ken: “The possibility that a cure for NF will be found.”

 

If you would like to support our efforts to fund research to end NF,
please visit ctf.org/hope and make a donation to the Hope for the Holidays campaign.

Close Menu