“My name is Marquila, I will be 28 on July 10th, and I’ve been living with NF1 for over two decades. I’m from St. Louis, MO, I have a five-year-old son, I love to dance, my favorite movie is “Transformers”, and I work with special needs children.
“To be honest, I didn’t know what neurofibromatosis was until I became an adult. When I was younger, I was often teased because I was different; I wore lifts on my shoes and had café au lait marks all over my body. However, overcoming that time in my life made be strong, it made me the woman that I am today. This is me, and I love the skin that I’m in.”