Genetic counselers at the Johns Hopkins Comprehensive Neurofibromatosis Center are conducting a survey to better understand how bullying and cyberbullying are impacting their adolescent NF patients. This research will be used to better inform their own practice, as well as to develop resources that will be available to teens, families and health care providers of those with NF1. The work may also be expanded to help teens and families with other genetic conditions.
Click here for a flyer about the study.
Click here for more information and contact details if you have any questions.
