The NF Collective, a group of organizations dedicated to improving the lives of neurofibromatosis (NF) patients and their families, announced today the launch of a new website – nfcollective.org – which provides accurate and reliable information about NF resources and caregivers. Visitors to the site will find up-to-date listings of NF experts and their contact information, the types of patients they see, and more.
The NF Collective was formed by a number of organizations focused on addressing various needs within the NF community. Recognizing a critical need for NF patients and families to find reliable NF care, the member organizations of the collective joined forces to provide a reliable, updated resource of NF providers. That resource is now live and available for viewing at nfcollective.org.
NF is a term used to represent a distinct set of separate genetic disorders known as NF1, NF2, and schwannomatosis. NF1 affects 1 in 3,000 people; NF2 affects 1 in 25,000; and schwannomatosis affects 1 in 40,000. NF affects all populations equally, across genders, ethnicities and races. The announcement today about this new patient resource takes place during the month of May, which is recognized by all NF organizations as NF Awareness Month, a time for raising awareness and education about neurofibromatosis.
The current NF Collective consists of the following organizations: Littlest Tumor Foundation, Neurofibromatosis Network, Neurofibromatosis Northeast, NF Midwest, NF Team, Texas Neurofibromatosis Foundation, and the Children’s Tumor Foundation.
To learn more, visit nfcollective.org
