Today, we make history... again! The FDA has officially approved Gomekli (mirdametinib) - the second-ever…
Childrens Tumor FoundationFebruary 11, 2025
NF affects 1 in every 2,000 births
NF refers to genetic conditions that cause tumors to grow on nerves throughout the body. NF includes all forms of neurofibromatosis and schwannomatosis and affects about 4 million people worldwide. Anyone can be born with NF, and it affects everyone differently. There is no cure yet.
2
FDA-approved drugs for NF, and more on the horizon
Koselugo (selumetinib) and Gomekli (mirdametinib). are the only FDA-approved drugs for NF1. CTF-funded research paved the way for these approvals, and more for all types of NF are on the horizon!
3X
the number of NF clinical trials in the past 10 years
There are currently 67 active clinical trials for NF – three times the number of trials than just ten years ago!
45
years of funding NF research
The Children’s Tumor Foundation was founded 45 years ago as the first grassroots organization to support patients with all types of NF.
11,000
have joined the NF Registry
The NF Registry is a secure website where people with NF can take an active role in the search for better treatments. Participating is easy and makes a difference!
20,000
patients each year visit the NF Clinic Network
The NF Clinic Network (NFCN) is the first nationwide network dedicated to improving clinical care and establishing best practices for treating individuals with NF.
CTF Knowledge Base
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Latest News
UF Health Jacksonville joins the NF Clinic Network
Enhancing Clinical Care for Neurofibromatosis and Schwannomatosis Patients UF Health Jacksonville joins the NF…
Good2Give Podcast: Understanding and Combating NF: Insights from the Children’s Tumor Foundation
Click here to jump to the podcast transcript. An episode of the Good2Give Podcast, hosted…
UF Health Jacksonville joins the NF Clinic Network
Enhancing Clinical Care for Neurofibromatosis and Schwannomatosis Patients UF Health Jacksonville joins the NF…
CureAge Therapeutics Launches to Advance Genetic Therapies for Neurofibromatosis
Children’s Tumor Foundation and Deep Science Ventures Spearhead New Biotech to Develop Curative Treatments for…
Good2Give Podcast: Understanding and Combating NF: Insights from the Children’s Tumor Foundation
Click here to jump to the podcast transcript. An episode of the Good2Give Podcast, hosted…
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