Collaboration Accelerates the Development of a Non-Invasive Blood Test to Identify and Track Cancerous Tumors…
Childrens Tumor FoundationJanuary 10, 2025
NF affects 1 in every 2,000 births
NF refers to genetic conditions that cause tumors to grow on nerves throughout the body. NF includes all forms of neurofibromatosis and schwannomatosis and affects about 4 million people worldwide. Anyone can be born with NF, and it affects everyone differently. There is no cure yet.
1
FDA-approved Drug for NF, and more on the horizon
Koselugo (selumetinib). is the first FDA-approved drug for NF. CTF-funded research paved the way to this drug approval, and we are working for more drug approvals for all types of NF!
3X
the number of NF Clinical Trials in the past 10 years
There are currently 67 active clinical trials for NF – three times the number of trials than just ten years ago!
45
years of funding NF research
The Children’s Tumor Foundation was founded 45 years ago as the first grassroots organization to support patients with all types of NF.
11,000
have joined the NF Registry
The NF Registry is a secure website where people with NF can take an active role in the search for better treatments. Participating is easy and makes a difference!
20,000
patients each year visit the NF Clinic Network
The NF Clinic Network (NFCN) is the first nationwide network dedicated to improving clinical care and establishing best practices for treating individuals with NF.
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Latest News
Good2Give Podcast: Understanding and Combating NF: Insights from the Children’s Tumor Foundation
Click here to jump to the podcast transcript. An episode of the Good2Give Podcast, hosted…
2024 Drug Discovery Initiative Awardees
The Children’s Tumor Foundation is pleased to announce a significant investment of more than $995,000…
Good2Give Podcast: Understanding and Combating NF: Insights from the Children’s Tumor Foundation
Click here to jump to the podcast transcript. An episode of the Good2Give Podcast, hosted…
Celebrating Orrin Evans: A GRAMMY® Nomination Rooted in Resilience
The Children’s Tumor Foundation proudly celebrates the recent GRAMMY® nomination of Orrin Evans and The…
2024 Drug Discovery Initiative Awardees
The Children’s Tumor Foundation is pleased to announce a significant investment of more than $995,000…
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