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Jill Beck - Schwannomatosis Patient Speech - Spectacular!
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Title
Jill Beck - Schwannomatosis Patient Speech - Spectacular!
Runtime
7:09
Views
1,171
Description
Jill Beck reveals what it is like living with a spouse who has Schwannomatosis
Title
Dr. Scott Plotkin - Progress of NF2 clinical trials
Runtime
4:31
Views
1,080
Description
Discusses his work in NF2 and talks about Avastin trials
Title
Dr. Jaishri Blakely - Schwannomatosis or NF2
Runtime
2:03
Views
623
Description
Discusses differences between NF2 and Schwannomtosis
Title
Dr. Roger Packer - NF Conference
Runtime
6:35
Views
597
Description
Talks about relationship with CTF and Consortium Donna via email asks "Is debulking surgery on plexiform nfs related to...
Title
David H. Viskochil - NF Conference
Runtime
8:34
Views
518
Description
Dr. Viskochil explains his past, current and future work and discusses the usage of genetic screenings in screening for ...
Title
Dr. Gareth Evans - Background - NF2 & Schwannomatosis
Runtime
3:27
Views
498
Description
Dr. Evans talks about his work in NF2 in Manchester and what he hopes to accomplish
Title
Amanda Bergner & Schwannomatosis Database
Runtime
5:14
Views
436
Description
What is the Schwannomatosis Database, and why is it important?
Title
Gareth Evans - Link Between NF2 and Schwannomatosis
Runtime
3:16
Views
433
Description
Janelle from New Zealand asks a schwannomatosis question. "I heard that schwannomatosis skips generations does this mean...
Title
Dr. Jaishri Blakely - Schwannomatosis Update
Runtime
3:37
Views
417
Description
Recaps the Schwannomatosis Meeting and explains what we can look forward as well as advise those patients around the c...
Title
Dr. Bruce Korf - NF Conference 2011
Runtime
1:22
Views
397
Description
Dr. Korf talks about the importance of the NF Conference and how it helps to drive research forward and initiate creativ...
Title
Dr. Wade Clapp - NF Conference - Part 1
Runtime
4:25
Views
349
Description
discuss his involvment with the Children's Tumor Foundation, and the Gleevac trial that is going on at Indiana as well a...
Title
Matthias Karajannis - What's happening with NF2 Clinical Trials
Runtime
2:59
Views
335
Description
Dr. Karajannis discusses clinical trials in NF2.
Title
Dr. Cynthia Hingtgen - NF Conference
Runtime
4:43
Views
327
Description
Responds to Sandy from Texas who has a son named Dustin who suffers daily all over skin pain, sharp shooting pains, hea...
Title
Dr. Kim Hunter-Schaedle on WHY the NF Conference?
Runtime
1:37
Views
297
Description
Explains why the NF Conference is pivotal for encouraging and promoting future research
Title
Dr. Kim Hunter-Schaedle on WHY the NF Conference?
Runtime
1:37
Views
297
Description
Explains why the NF Conference is pivotal for encouraging and promoting future research
Title
Debra Mayes - Explains "Bench to Bedside"
Runtime
2:52
Views
282
Description
Dr. Mayes talks about the research cycle "From Bench to
Title
Dr. Bruce Korf - NF Conference Part 2
Runtime
3:19
Views
213
Description
Dr. Korf discusses the current standing of the NF 'landscape' and what we should expect to see in the future with regard...
Title
Dr. David Stevenson - NF Conference
Runtime
3:15
Views
200
Description
Skeletal abnormalities in NF1
Title
Dr. Kevin Shannon - NF Conference 1 of 3
Runtime
3:19
Views
175
Description
Shelia from email asks "Will my son need MRIs his whole life because of NF?"
Title
Visual Traits to NF2? - Dr. Gareth Evans
Runtime
2:00
Views
169
Description
Sally from facebook asks "are there any visual traits to be looking out for in regards to NF2?"
Title
Dr. Wade Clapp - NF Conference - Part 2
Runtime
2:09
Views
164
Description
Look to the future
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