It is currently Mon Mar 22, 2010 9:10 am
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- Neurofibromatosis
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General Discussions
Moderator: Vandaar - 9758 Topics
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Last post by grandmabumps
Sun Mar 21, 2010 10:54 am
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General Discussions
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NF and Children
Moderator: Vandaar - 5682 Topics
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Last post by JoyfulMama
Mon Mar 22, 2010 4:23 am
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NF and Children
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Personal Stories
Moderator: Vandaar - 642 Topics
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Last post by Rose_58
Sat Mar 13, 2010 9:45 pm
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Personal Stories
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Kitchen Table (Non NF Topics)
Moderator: Vandaar - 8656 Topics
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Last post by legend
Mon Mar 22, 2010 4:42 am
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Kitchen Table (Non NF Topics)
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- NF2
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General Discussions
Moderator: Vandaar - 359 Topics
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Last post by Lavender
Mon Jan 04, 2010 9:06 pm
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General Discussions
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Auditory Brainstem Implants
Moderator: Vandaar - 21 Topics
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Last post by nf2mann
Wed Jan 24, 2007 10:59 pm
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Auditory Brainstem Implants
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Personal Stories
Moderator: Vandaar - 68 Topics
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Last post by pmteet
Wed Nov 18, 2009 4:49 am
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Personal Stories
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- Schwannomatosis
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General Discussions
Schwannomatosis is a form of neurofibromatosis that causes tumors called schwannomas to grow on the outer covering (sheath) of the nerve. Individuals with schwannomas do not develop the auditory tumors associated with NF2. It is unclear how many people suffer from this disorder but some reports indicate that schwannomatosis may occur in approximately 1 in 40,000 births similar to NF2. Pain is usually the first symptom of schwannomatosis.
Moderator: Vandaar - 78 Topics
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Last post by Marty1
Sat Feb 06, 2010 6:14 pm
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General Discussions
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- ADDITIONAL FORUMS
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Pen Pals Wanted
Moderator: Vandaar - 999 Topics
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Last post by Vandaar
Thu Feb 25, 2010 12:56 am
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Pen Pals Wanted
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NF & Learning Disabilities
About half of the NF 1 population has Learning Disabilities, and for many of the children and teens with the disorder, learning disabilities represent the most difficult burden. BB users are encouraged to discuss here their experiences, coping strategies, interactions with schools and medical professionals.
Moderator: Vandaar - 110 Topics
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Last post by hummingplant
Mon Jan 25, 2010 3:11 pm
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NF & Learning Disabilities
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NF and Women's Health
In response to the many postings dealing with the issues that women face living with NF (e.g., NF and pregnancy, NF and hormone replacement therapy, the effect of birth control pills on NF) we have created this new forum for our users to discuss these and any other issues related to women's issues and NF.
Moderator: Vandaar - 184 Topics
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Last post by Chigirl
Wed Oct 21, 2009 1:45 pm
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NF and Women's Health
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Coping with NF
Living with NF can be challenging and many of our BB users have offered their support, guidance and advice on various ways to cope with the emotional, spiritual and physical burdens that NF can sometimes cause.
Moderator: Vandaar - 214 Topics
- 1669 Posts
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Last post by Kitty Lover
Mon Feb 15, 2010 12:28 pm
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Coping with NF
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