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Our fact sheets, brochures, and videos provide in-depth information about NF and the research underway to find a cure. Search for the topics of interest to read and download related materials.

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Latest/Featured Resources

Super Emerson (English)

Description

Super Emerson is a children’s book that introduces neurofibromatosis type 1 (NF1) through the story of a young child with the condition. It can be used on its own or along with the parent resource, Talking to Your Child About NF1, designed to complement it.
 

Super Emerson is a children’s book that introduces neurofibromatosis type...

Talking to Your Child About NF1 (English)

Description

Talking to Your Child About NF1 is a comprehensive guide that helps caregivers decide what and how to share a diagnosis of neurofibromatosis type 1 (NF1) with their child. It can be used on its own or together with the children's resource, Super Emerson, designed to complement it.

Talking to Your Child About NF1 is a comprehensive guide...

NF Parent Guidebook

Description

A 160-page guidebook for parents of children living with NF1 from the Children's Tumor Foundation. Read more about the parent guidebook HERE. 

A 160-page guidebook for parents of children living with NF1...

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NF2-SWN Infographic

Description

This NF2-related schwannomatosis (NF2-SWN) infographic features colorful images, facts, and statistics about these rare genetic conditions.

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This NF2-related schwannomatosis (NF2-SWN) infographic features colorful images, facts, and...

NF2-SWN Fact Sheet

Description

A summary of important facts about NF2-related schwannomatosis (NF2-SWN).

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A summary of important facts about NF2-related schwannomatosis (NF2-SWN).

NF2-SWN Fact Sheet (Spanish)

Description

A Spanish translation of CTF's important facts about NF2-related schwannomatosis (NF2-SWN).

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A Spanish translation of CTF's important facts about NF2-related schwannomatosis...

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View educational videos about NF diagnosis, management, and research.

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Featured Playlists

Nfi webinar january 12.

Educational Webinars

NF2-SWN Education

Ask kate questions and answers about children's foundation.

Ask Kate! Q&A about NF

Graphic for "nf summit" featuring the children's tumor foundation logo on a blue and green gradient background.

NF Summit 2024

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Our fact sheets and brochures provide in-depth information about NF and the research underway to find a cure. Click on the topics of interest to view and download related materials.

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