Our fact sheets, brochures, and videos provide in-depth information about NF and the research underway to find a cure. Search for the topics of interest to read and download related materials.
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Super Emerson (English)
Description
Super Emerson is a children’s book that introduces neurofibromatosis type 1 (NF1) through the story of a young child with the condition. It can be used on its own or along with the parent resource, Talking to Your Child About NF1, designed to complement it.
Super Emerson is a children’s book that introduces neurofibromatosis type...
Super Emerson is a children’s book that introduces neurofibromatosis type 1 (NF1) through the story of a young child with the condition. It can be used on its own or...
Talking to Your Child About NF1 (English)
Description
Talking to Your Child About NF1 is a comprehensive guide that helps caregivers decide what and how to share a diagnosis of neurofibromatosis type 1 (NF1) with their child. It can be used on its own or together with the children's resource, Super Emerson, designed to complement it.
Talking to Your Child About NF1 is a comprehensive guide...
Talking to Your Child About NF1 is a comprehensive guide that helps caregivers decide what and how to share a diagnosis of neurofibromatosis type 1 (NF1) with their child. It...
NF Parent Guidebook
Description
A 160-page guidebook for parents of children living with NF1 from the Children's Tumor Foundation. Read more about the parent guidebook HERE.
A 160-page guidebook for parents of children living with NF1...
A 160-page guidebook for parents of children living with NF1 from the Children's Tumor Foundation. Read more about the parent guidebook HERE.
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Our fact sheets and brochures provide in-depth information about NF and the research underway to find a cure. Click on the topics of interest to view and download related materials.
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