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Our fact sheets, brochures, and videos provide in-depth information about NF and the research underway to find a cure. Search for the topics of interest to read and download related materials.

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Latest/Featured Resources

Super Emerson (English)

Description

Super Emerson is a children’s book that introduces neurofibromatosis type 1 (NF1) through the story of a young child with the condition. It can be used on its own or along with the parent resource, Talking to Your Child About NF1, designed to complement it.
 

Super Emerson is a children’s book that introduces neurofibromatosis type...

Talking to Your Child About NF1 (English)

Description

Talking to Your Child About NF1 is a comprehensive guide that helps caregivers decide what and how to share a diagnosis of neurofibromatosis type 1 (NF1) with their child. It can be used on its own or together with the children's resource, Super Emerson, designed to complement it.

Talking to Your Child About NF1 is a comprehensive guide...

NF Parent Guidebook

Description

A 160-page guidebook for parents of children living with NF1 from the Children's Tumor Foundation. Read more about the parent guidebook HERE. 

A 160-page guidebook for parents of children living with NF1...

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NF2-SWN Infographic

Description

This NF2-related schwannomatosis (NF2-SWN) infographic features colorful images, facts, and statistics about these rare genetic conditions.

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This NF2-related schwannomatosis (NF2-SWN) infographic features colorful images, facts, and...

NF2-SWN Infographic (German)

Description

This NF2-related schwannomatosis (NF2-SWN) infographic features colorful images, facts, and statistics about these rare genetic conditions translated in German.

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This NF2-related schwannomatosis (NF2-SWN) infographic features colorful images, facts, and...

Diagnosed with NF1

Description

An informative booklet for patients diagnosed with neurofibromatosis type 1 (NF1).

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An informative booklet for patients diagnosed with neurofibromatosis type 1...

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View educational videos about NF diagnosis, management, and research.

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Featured Playlists

Illustration of an adult and child at a desk with the text "NF Knowledge Series Webinar: NF1 Cognitive Research" and the Children's Tumor Foundation logo.

NF Knowledge Series: Educational Webinars

NF2-SWN Education

A woman in a blue shirt that reads "Children's Tumor Foundation" sits beside large text that says "What is NF? Big Questions About NF?" on a colorful background.

Big Questions About NF

Graphic for "nf summit" featuring the children's tumor foundation logo on a blue and green gradient background.

NF Summit 2024

A paper airplane flies away from an envelope icon with charts, trailing a dotted line.

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