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Shine a light nf walk logo.

We’re bringing NF out of the shadows and inspiring the community to come together to End NF.

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Shine a Light NF Walk

Shine a Light NF Walk is the signature fundraising event of the Children’s Tumor Foundation. Our goal is to spread awareness of neurofibromatosis and schwannomatosis – genetic conditions that collectively affect more than 4 million people worldwide – and raise critical funds to advance research and treatments. Held in communities across the US, Shine a Light NF Walks are family-friendly events where NF patients, families, and friends can connect with others on a similar journey. For more information, contact us at shinealightwalk@ctf.org.

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Find an event

Interested in volunteering for an event near you?

Create Your Own Event!

Hold a bake sale, host a cocktail hour, put on an auction…the possibilities are endless! Create your own fundraiser for the Children’s Tumor Foundation.

Get Started

Find a Participant/Team

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Why you should get involved

A young boy holding a sign that says make nf visible.

Impact

When you participate in a Shine a Light Walk, you are funding vital NF research

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Community

Our Shine A Light Walks inspire the community to come together

A man and a boy walking down a track wearing t - shirts that say end nff.

Incentive

We recognize your efforts through our Fundraising Incentive Program.

Featured Stories / Testimonials

Child in a white dress sits on a stone wall by the sea, smiling, with a rocky shoreline and turquoise water in the background.
NF1

Story of NF: Lainey O.

This Story of NF was submitted by Lainey's mother, Whitney. It all happened very suddenly…
A person wearing glasses and a yellow shirt holds two small gray kittens in front of a brick wall.
NF1

Story of NF: Catherine K.

When I was born, something wasn’t right with my eyes. One was basically closed shut;…
Person wearing glasses and a hijab, smiling at the camera.
NF2-SWN

Story of NF: Anisha R.

I was diagnosed at the age of 26 in 2022. I experienced extraordinary NF2-SWN effects…

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