My name is Jeff. I am 37 and also have NF2. I had one AN removed just about 1 year ago and went from perfect hearing in that ear to virtually none in the course of just hours. Surgery for this tumor was the only option due to it's size and the fact that it had a 5 cm. cyst attached. I have an AN on the other side which I am waiting and watching. I am currently a music teacher, but have already made arrangements to move into a Librarian position next fall. All the doctors I have spoken with tell me that deafness or hearing impairment is highly likely. I have chosen to make this move while I still have good hearing in one ear. If I maintain my hearing, great, but I can't afford to losing my hearing and my job at the same time. Personally, I am not convinced that radiation is the best long-term solution for me. I wish someone could tell me that there is long-term data regarding radiation and hearing preservation for NF2 patients
, but I have not found that doctor. My brother also was diagnosed this last year, and he has chosen to have radiation in Portland, OR Emanuel Hospital Novalis Info
Unfortunately, there seem to be no great solutions at this time. <img border="0" title="" alt="[Frown]" src="frown.gif" />
I would also suggest that you join the NF2 Crew group (on Yahoo). This is a group of people who have NF2. Post any question you like, and folks will answer with their personal experience, or direct you to information regarding your question. I have found them to be extremely willing to help with regards to treatment options, and generally dealing with NF2. There are people in the group who have dealt with these questions for much longer than I. Best wishes to you. If I can help in any way, please let me know.