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Schwannomatosis is a form of neurofibromatosis that causes tumors called schwannomas to grow on the outer covering (sheath) of the nerve. Individuals with schwannomas do not develop the auditory tumors associated with NF2. It is unclear how many people suffer from this disorder but some reports indicate that schwannomatosis may occur in approximately 1 in 40,000 births similar to NF2. Pain is usually the first symptom of schwannomatosis.

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Hi

Postby Annie12 » Fri Dec 21, 2007 12:54 pm

Hi everyone this is annie12, I have not posted for a while hope everyone is doig good,

I have noticed that i am getting more turmers lately don,t know why.

have to go for now.

By for now

Annie12
Annie12
 
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Hi

Postby shellyb » Wed Dec 26, 2007 3:47 am

Hi Annie,
How are you? I don't know why you are gettting more. have you had tumors removed from the spots where you are getting them. I have noticed that where I have had mine removed they have come back plus I think they are a tad bit bigger. see you around
shelly
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Hi

Postby shellyb » Wed Dec 26, 2007 3:48 am

by the way I was first dianosed with the schwannomatosis, now another doctor says it is NF 1, but to me they treat it all the same and it effects us all differently.
shelly
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Re: Hi

Postby jenniferhoops01 » Sat Aug 07, 2010 12:30 am

Hi Annie, How are you? I am Jennifer.
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