My Dad has the 'bumps' all over his face. Usually its the kids that stare at him and walk up and ask him about the bumps. My dad would reply, "I forgot to eat my corn, this is what happens when you don't". My dad, ever the joker will come up with another 'far out' explanation..."I come from the planet Zhort. I just landed on earth yesterday to study little kids like you." Of course he doesn't scare them, they just get really excited and tell their parent's that he's from outer space. Of course you get mixed reactions from parents about the 'planet' story.
I myself have NF and I'm starting to get the Nodules. The Nodules started growing for me in my early 20's. I'm now going on 28 and I'm noticing that the bumps are becoming more noticable on my arms, hands, face....etc.
I don't know what I'm going to say when a child or an adult asks me what's wrong. Of course I'll tell them I have the disease, but it gets hard and frustrating because the people usually don't know about NF. So I basically have to give them a condensed version about the disease. I don't mind it when people ask me why I look the way I do. It's the constent staring, pointing, and whispering that bug me. I think it's rude when people do that.
It's not like I'm not 'used' to the staring. I have my breast bone 'sticking out'. All of my Tumors are growing inside my body wrapped all around my vital organs. From the tumors that are wrapped around my lungs and heart, the tumors has pushed my breast bone out when I started puberty. I'm used to the staring and whispering, I've had to deal with it starting at the age of 8. I can handle the stares and I'm sure when the time comes, I'll know what to say when someone asks about 'the bumps'.
<small>[ June 22, 2004, 03:41 AM: Message edited by: Budget's Gal ]</small>