Schwannomatosis is a form of neurofibromatosis that causes tumors called schwannomas to grow on the outer covering (sheath) of the nerve. Individuals with schwannomas do not develop the auditory tumors associated with NF2. It is unclear how many people suffer from this disorder but some reports indicate that schwannomatosis may occur in approximately 1 in 40,000 births similar to NF2. Pain is usually the first symptom of schwannomatosis.
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- ** my disabled husband walking for nf in my honor **
by HillaryS1201 » Sat Apr 28, 2012 3:09 am
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- Just found out that I need to remove turmors from my c1-c2
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- Hi
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- product research
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- What treatments have you tried for tumor pain?
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- new member would like to say hi !!
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- 18 years ago told I have NF1 now maybe Multiple schwannomato
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- Recommending a neurosurgeon in NYC
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- upcoming surgey
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- anyone else with this?
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- Hello!
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- FITZVEY
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- Happy New Year To All
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- Saw 7 Doctors who knew nothing!
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- how many are out there?
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