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Resource Center

Our fact sheets, brochures, and videos provide in-depth information about NF and the research underway to find a cure. Search for the topics of interest to read and download related materials.

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Latest/Featured Resources

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Pain in Schwannamatosis

The Children’s Tumor Foundation has published a resource on schwannomatosis pain and resiliency.

Super Emerson (English)

Super Emerson (English)
Super Emerson (English)
Description

Super Emerson is a children’s book that introduces neurofibromatosis type 1 (NF1) through the story of a young child with the condition. It can be used on its own or along with the parent resource, Talking to Your Child About NF1, designed to complement it.
 

Super Emerson is a children’s book that introduces neurofibromatosis type...

Super Emerson is a children’s book that introduces neurofibromatosis type 1 (NF1) through the story of a young child with the condition. It can be used on its own or...

Talking to Your Child About NF1 (English)

Talking to Your Child About NF1 (English)
Talking to Your Child About NF1 (English)
Description

Talking to Your Child About NF1 is a comprehensive guide that helps caregivers decide what and how to share a diagnosis of neurofibromatosis type 1 (NF1) with their child. It can be used on its own or together with the children's resource, Super Emerson, designed to complement it.

Talking to Your Child About NF1 is a comprehensive guide...

Talking to Your Child About NF1 is a comprehensive guide that helps caregivers decide what and how to share a diagnosis of neurofibromatosis type 1 (NF1) with their child. It...

NF Parent Guidebook

NF Parent Guidebook
NF Parent Guidebook
Description

A 160-page guidebook for parents of children living with NF1 from the Children's Tumor Foundation. Read more about the parent guidebook HERE. 

A 160-page guidebook for parents of children living with NF1...

A 160-page guidebook for parents of children living with NF1 from the Children's Tumor Foundation. Read more about the parent guidebook HERE. 

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NF2-SWN Infographic

<em>NF2</em>-SWN Infographic
NF2-SWN Infographic
Description

This NF2-related schwannomatosis (NF2-SWN) infographic features colorful images, facts, and statistics about these rare genetic conditions.

Listing Tags

This NF2-related schwannomatosis (NF2-SWN) infographic features colorful images, facts, and...

This NF2-related schwannomatosis (NF2-SWN) infographic features colorful images, facts, and statistics about these rare genetic conditions.

NF2-SWN Infographic (German)

<em>NF2</em>-SWN Infographic (German)
NF2-SWN Infographic (German)
Description

This NF2-related schwannomatosis (NF2-SWN) infographic features colorful images, facts, and statistics about these rare genetic conditions translated in German.

Listing Tags

This NF2-related schwannomatosis (NF2-SWN) infographic features colorful images, facts, and...

This NF2-related schwannomatosis (NF2-SWN) infographic features colorful images, facts, and statistics about these rare genetic conditions translated in German.

NF2-SWN Fact Sheet

NF2-SWN Fact Sheet
NF2-SWN Fact Sheet
Description

A summary of important facts about NF2-related schwannomatosis (NF2-SWN).

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A summary of important facts about NF2-related schwannomatosis (NF2-SWN).

A summary of important facts about NF2-related schwannomatosis (NF2-SWN).

View More Videos

View educational videos about NF diagnosis, management, and research.

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A woman wearing a t-shirt with the words make nf visible.Play Video

Featured Playlists

Two people watch a laptop for the NF1 Cognitive Research webinar. A headshot of Yang You, PhD, is on the right. Text includes FSU and Children's Tumor Foundation logos.

NF Knowledge Series: Educational Webinars

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NF2-SWN Education

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Ask kate questions and answers about children's foundation.

Ask Kate! Q&A about NF

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Graphic for "nf summit" featuring the children's tumor foundation logo on a blue and green gradient background.

NF Summit 2024

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View All Resources

Our fact sheets and brochures provide in-depth information about NF and the research underway to find a cure. Click on the topics of interest to view and download related materials.

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For Individuals

Click the link below to request a print copy of select CTF resources from our partners at Mele Printing.

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For Clinics

NF Clinics may request print resources to share with patients and families.

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