Posted: November 18th, 2009 | Author: Emily Brown | Filed under: Children's Tumor Foundation | Tags: Children's Tumor Foundation, clinical trials, forum, Las Vegas, research, symposium | No Comments »
On April 9-11, 2009, the Children’s Tumor Foundation will host the second annual National Patient and Family Medical Symposium. This year’s event will take place at the family friendly Green Valley Ranch Resort just 15 minutes outside of Las Vegas. The forum will focus on advances in research, clinical trials and advice for patients and their families living with neurofibromatosis. For more information, please contact Traceann Adams at (Enable Javascript to see the email address). Registration opened on Nov. 16, 2009.
Posted: October 28th, 2009 | Author: Emily Brown | Filed under: fundraising, races/destinations | Tags: fundraising, ING NYC Marathon, new york, research, runners | No Comments »
On Sunday, Nov. 1st NF Endurance will have more than 60 runners on the 2009 ING NYC Marathon course. Team Julia Ladybug will bring eight runners to the ING NYC Marathon in honor of Julia “Ladybug” Perfetti who, at just 7-years-old, has to have an MRI every six months to recheck her brain stem. Composed of eight of our Endurance teammates, this group has their fundraising goal set at $20,000 for the Foundation. They are running to raise awareness about neurofibromatosis research. Their motto is: The miracle will not be that we finished, but that we had the courage to start. To learn more, please visit www.teamjuliabug.com.
