We are sorry for the inconvenience, this is STILL the NF Endurance Energy Blog. We updated our WordPress version and it kind of messed things up... ehh errr... It should hopefully be fixed soon!
GOODBYE SUMMER
Celebrate the last long weekend of summer vacation at the Rock ‘n’ Roll Virginia Beach Half Marathon with NFE. You can follow Steve, Joe and the NFE crew in Virginia Beach on Twitter (@NFEndurance). The NFE VA Beach Team has raised more than $17,000 for NF research. You can help them meet their fundraising goal by visiting the team page. Are you as excited about the fall season as we are? Check out our fall schedule here.
READ
Check out how the Ogle family organized a successful 5K in honor of Leo Ogle in this article. Read how they got creative when they ran out of bib numbers.
HOT, HOT, HOT
QUESTION Check out Dr. Kim’s answers to questions from the Foundation community about NF. She will be taking questions throughout the year — stay tuned!
WATCH
Trapped in indoors because of Hurricane Earl? Our training expert Anna Renderer’s treadmill blast will keep your training on track with this video showing a challenging set of exercises.
Active Fundraising Page of the Week
Check out Susan Keegan’s fundraising page here. She tells her story through well placed pictures, a compelling narrative and a clearly stated goal.
TAKE FIVE Five tips from Active.com on how to run in better form.
May is NF Awareness Month, and in a particular effort to help get the word out, we have designated Thursday, May 20 as NF Awareness Day. Please share this article with friends and family to help us get the word out and end NF!
10. Neurofibromatosis (NF) affects more than 1 in every 3,000 children born each day (more than cystic fibrosis, Duchenne muscular dystrophy and Huntington’s disease combined) (learn more).
9. It only takes eight to 10 letters from you and your friends to your state representatives for them to begin noticing that NF is a REAL issue. (learn more).
8. NF research is shedding new light on cancer, brain tumors, learning disabilities, and bone abnormalities – ultimately benefiting the broader community and those with NF. (learn more)
7. On May 8, 2010, in Greensboro N.C., there were more than 1,700,000 steps taken to find a cure for NF at the first North Carolina NF Walk (learn more).
6. The NF Clinic Network now has 42 recognized centers throughout the country (learn more).
5. This year, Racing4Research completed 611 Laps in the Rolex 24 Hours at Daytona International Speedway raising spirits, funds and awareness for our NF Heroes! (learn more)
4. To date, the Foundation’s investment of $700,000 in the Drug Discovery Initiative has returned $3.7 million in follow-on funding. Every dollar counts. (learn more)
3. In 2009 more than 1,500 Runners in neon NF Singlets crossed finish lines in 50 races nationwide for the NF Endurance Team.(learn more)
2. There are three forms of neurofibromatosis: NF1, NF2, and schwannomatosis. Each can cause tumors to grow on nerve endings in or on the body. (learn more)
And the No. 1 thing to be Aware of on NF Awareness Day: Every day NF research is moving closer to treatments and a cure for the many manifestations of NF. Your continued support of this critical research is improving the lives of millions of people as we work to end NF.
GOODBYE SUMMER
Check out Dr. Kim’s answers to questions from the Foundation community about NF. She will be taking questions throughout the year — stay tuned!