Fighting NF: Superhero Style

Gryff and super mutants fighting NF!

Check out Gryff and his super mutants fighting our “nasty neurofibromatosis nemesis.” Gryff is one of our NF heroes and when his parents asked him how he thinks he “got” NF, they explained in superhero terms.

“We said it’s like with his heroes, the X-Men, who are born with a genetic mutation,” said his sidekicks, Mindia and Steve  Fryer. “The X-Men are both gifted and challenged by mutation, as are all NF heroes.” Gryff and his crew will be participating in the Disney Circle of Life 5K in January. Read more about OUR amazing superhero, Gryff.

Have your kids been expressing their thoughts about NF or about your training? Send us their artwork. We are thinking about creative ways to show off their talent and spread awareness.

Take Three with Tracy

Did you know that our team captain coordinator, Tracy Draper ((Enable Javascript to see the email address)), is also a personal trainer? She has conquered the half marathon, full marathon, triathlon and being a mom! She will be posting on the blog as well to share her knowledge of training and nutrition. You can meet Tracy personally if you run the Disney World Marathon or Half Marathon in January.

1. Favorite snack: bagel with peanut butter; water or non-citrus fruit drink
2. Super Stretch: Warm up the knees and stand with knees together and bend down.  Place hands on knees, circle knees to the right five times (slowly); repeat to the left.  Two reps.
3. Mental edge: Visualize yourself along the course from start to crossing the finish.  Imagine your NF Hero being cheering you across the finish line.
Tell yourself, “I can do this!” — and believe it!