Weekend Pacesetter (April 30-May 1, 2010)

Oink! Oink! NFE will be at the Flying Pig Marathon.

COAST TO COAST
From Eugene, Ore., to Long Island, N.Y., NF Endurance will have participants in a variety of races this weekend. Chaun Steiner is leading the Flying Pig team. Krissy Diaz and Anne Shigley will bring in runners at the Long Island Marathon. And, the Lincoln National Guard team has strong leadership in Andy & Amy Schafer and Sharon Pfieffer.

Here’s the run down:

Flying Pig Marathon
Sunday, May 2, 2010 • Cincinnati, Ohio
Race Web site
NF Endurance Team Web site
Team Captain: Chaun Steiner
Total fundraising to date: $8,350

Eugene Marathon
Sunday, May 2, 2010 • Eugene, Ore.
Race Web site
NF Endurance Member: Christa Heinz

Long Island Marathon
Sunday, May 2, 2010 • Long Island, N.Y.
Race Web site
NF Endurance Team Web site
Team Captain (s): Krissy Diaz and Anne Shigley
Total Fundraising to date: $4,150

Lincoln National Guard Marathon
Sunday, May 2, 2010 • Lincoln, Neb.
Race Web site
NF Endurance Team Web site
Total Fundraising to date: $7,760

REGISTER FOR NF CAMP
NF Camp is a unique chance for kids who have NF to meet peers to share in what it’s like to live with NF. Held in Utah, NF Camp offers an opportunity for kids across the United States to participate in one of two sessions, July 17-23 and July 24-30. Campers can register for whichever week best fits their family schedule. Click here to download the camp application. Scholarships are available. For more information, please contact Patrice ((Enable Javascript to see the email address)). Also, if you are interested in sponsoring a child to go to NF, or being a counselor-in-training, please contact Patrice. For more information, please download a camp brochure here.

SNACK TIME
Jennifer Garner is teaming up with Frigidaire for Make Time for Snack Time, a virtual campaign to promote healthier lifestyles in children. For each time someone visits the site and “stops” the clock, which is composed of healthy food choices, Frigidaire will donate $1 to support Save the Children. After you click on an ingredient you will be directed to a healthy snack recipe. For example if you land on “raisins” you will get instructions for ants on a log and warm fruit and nut mix. For more brain food for athletes, check out these tips from Active.

THANK MOM
We have so many hardworking moms on our NF Endurance Team; Start thinking now (it’s next weekend!) about how you can say thanks for all they do to help make our lives just a little bit easier. Here are some fun e-card sites.
- Hallmark -  Try taking a picture of her in an NF running singlet and making a photo card on hallmark.com ($1/hallmark.com).
- MOMA – For the artsy mom, choose your favorite print such as Louise Bourgeois’ I Love You and customize with your message. (FREE; moma.org/ecards)
- Hipster – You had to get your charming funkiness from someone; thank mom! (FREE; hipstercards.com)

MAY = NF AWARENESS MONTH

Saturday, May 1, 2010 will kick off NF Awareness Month. Here is a way to spread awareness about NF and the work of the Children’s Tumor Foundation: The Foundation’s Annual Report, which is now online. To date, the Foundation’s investment of $700,000 in the DDI has returned $3.7 million in follow-on funding. What does that mean? Every $1 donated to the DDI program became more than $5 for NF research. Kudos to everyone for your help in our shared goal to find a cure for NF. And, for additional educational information on NF, check out these PowerPoint presentations from the University of Alabama-Birmingham’s NF Clinic. Authors include Dr. Daniel Marullo, Dr. Bruce Korf, Dr. Joseph Ackerson and Dr. Kevin Boyd.