We are sorry for the inconvenience, this is STILL the NF Endurance Energy Blog. We updated our WordPress version and it kind of messed things up... ehh errr... It should hopefully be fixed soon!
Molly has been working hard this week to get new gear into the team store. The additions include a Brooks Women’s 1/2 Zip Essential Pullover, Brooks Men’s 1/2 Zip Infiniti Pullover, Brooks Spartan Pants, and an “It’s in you. It’s possible” long-sleeve shirt. Also, just in time for the holiday shopping season, the store is now offering FREE SHIPPING ON ALL ORDERS ABOVE $50!!!
DID YOU KNOW: Our prices for Brooks products are comparable to the price you would pay at most stores. The only difference is our products have the NF Endurance logo and all profits from our store fund research to cure NF.
Is worth two not run yet. Or something along those lines… As most of you know, this weekend is the NYC Marathon! The NYC Marathon is one of our team’s biggest fundraising successes every year. This year we have over 60 runners racing with us who have already raised over $140,000! That’s quite the achievement! We also have 14 runners doing the Amish Bird in Hand Half Marathon in Lancaster, PA on Saturday. Bruce Rickert was unable to run the Philly RnR Half Marathon in September due to an injury. He challenged his fellow teammates to join him for the Bird in Hand once he had healed. For every runner who signed up with NF Endurance for the race, Bruce is donating $200. Thank you Bruce for your commitment to the team!
World Run Day Logo
WORLD RUN DAY: NOVEMBER 7, 2011
It’s that time of year again! World Run Day is a running event held for over ten years to celebrate the sport and charitable giving. And, another excuse to wear your NF singlet on the course. If you are not already running a race this weekend, find a group celebrating near you by clicking here.
WATCH
If you need motivation for that long weekend run, watch this video of Denver Wakin. Team Wakin is gearing up for three events this year including San Antonio, Dallas and Disney. You can check out more of their story here. In addition, they have teamed up with Chocolate Silver Designs to sell NF Necklaces to benefit the Children’s Tumor Foundation. Fun jewelry and life-saving research? Now that’s a win-win.
LOAN
Here is some positive news around the mortgage industry. Every time Robert Heideman closes a new home loan, he will make a personal donation to the Children’s Tumor Foundation as part of his Charitable Promises initiative. Read more here.
READ
Bob Skold shares his favorite running reads. Check out one of the books below to help improve your training.
- Courage to Start by John Bingham
- No Need for Speed by John Bingham
- Marathoning for Mortals by John Bingham and Jenny Hadfield
- Marathon — The Ultimate Training Guide by Hal Higdon
- Learning to Walk – From Sofa to Marathon in Nine Months by Sheilagh Conklin (Conklin is a veteran participant of the NF Endurance Team in Portland).
- My Life on the Run — The Wit, Wisdom, and Insights of a Road Racing Icon by Bart Yasso
- The Runner’s Guide to the Meaning of Life - by Amby Burford
- The Quotable Runner – edited by Mark Will-Weber
- The Complete Book of Long-Distance Cycling: Build the Strength, Skills, and Confidence to Ride as Far as You Want by Edmund Burke
- Triathlete Magazine’s Complete Triathlon Book: The Training, Diet, Health, Equipment, and Safety Tips You Need to Do Your Best by Matt Fitzgerald
REMEMBER
Run in memory for those who lost their lives on 9-11 by running in a 5K on Saturday. To find a race near you, visit Running in the USA.
Check out these weekend Foundation Events:
- Saturday, Sept. 11, 2010 – Spanish speaking symposium; Washington D.C. 9:00 a.m. – 12:00 p.m. NF Walk; Milwaukee, Wisc.; 10:00 a.m.
- Sunday, Sept. 12, 2010 – NF Walk; Denver, Colo.; 2:00 p.m.
Active Fundraising Page of the Week Raphael Bazin Why we like it: It’s in French! Raphael will come all the way from France to participate in the ING NYC Marathon with NFE in November. Our question is, will he carry the Eiffel Tower on his back like this runner from the 2009 race?
HOTTT
Steve Kendra has driven out to Texas for Hotter’n Hell, the largest sanctioned bike ride in the country, based in Wichita Falls. NFE will have more than nine riders braving hot temperatures to raise awareness and funds for NF. They have already met their goal of $10,000, but you can help them fund even more research by visiting their team page. One of the heroes for the weekend is Perrie Smith. Her dad, Darren, will be riding in her honor. Check out this article in the Times Record News on his efforts. To learn more about Perrie, read her story below.
Perrie Smith lives with more than 50 birthmarks all over her body. The biggest one is on her right leg; she calls it the birthmark the size of Alabama. When Perrie was younger, she had to get a tumor removed from her upper lip and she had to endure comments from kids at school. “When I go to the pool, I see girls and boys that have only one birth mark that is barely noticeable,” said Perrie. “If I am wearing shorts people sometimes stare at my leg which makes me feel kind of bad.” In dance class, girls would come up to Perrie and start counting the birth marks on her back. “I may have NF, but I am living a life that I want to live and not letting anyone get to me.”
RuNFor Leo
On Friday, Aug. 27, 2010, the K-Bay 5K will raise funds for the Foundation in honor of little Leo in Homer, Alaska. For more information, please e-mail Denise Ogle at (Enable Javascript to see the email address)
SYMPOSIUM If you live in Missouri, be sure and check out the Back to School Symposium hosted by the Foundation from 2:00 – 4:00 p.m. on Saturday, Aug. 28, 2010. The symposium will focus on “Advocacy for Learning Issues for Kids with NF.” Please join us as Dr. Joel Nadler provides back to school advice for parents on ways to advocate for their children in school.
TRAIN The fall running season will be here soon. Have you started training for your next NFE event? Be sure and take advantage of our online training plans or get in touch with one of our certified coaches for a personalized training plan. Do you have specific training questions you would like answered by our training blogging expert, Anna Renderer? Make sure to post our comments, and we will get those questions to her.
Q&A
You asked, we answered. Check out Dr. Kim Hunter-Schaedle’s answers to questions submitted by the Foundation community about NF. Don’t worry if you missed out on submitting your question. Every few months she will be taking Q&A’s submitted on the blog and Facebook. You can follow the Foundation by visiting www.facebook.com/childrenstmrfdn.
Here is one she answered for us.
Q. How many children are born with NF in the U.S. each year? A. NF affects one in every 3,000 children born each year in the United States (and throughout the rest of the world). The United States has 14 births per 1,000 capita per year, and a U.S. population of approximate 300 million. “By my estimate,” says Hunter-Schaedle, “this means there are 1,400 U.S. births affected by NF per year.”
ING NYC MARATHON
Don’t miss out on one of the most premier races in the country. Secure one of NFE’s last remaining spots for the ING NYC Marathon on Nov. 7, 2010. E-mail Molly ((Enable Javascript to see the email address)) for more information.
Perrie Smith lives with more than 50 birthmarks all over her body. The biggest one is on her right leg; she calls it the birthmark the size of Alabama. When Perrie was younger, she had to get a tumor removed from her upper lip and she had to endure comments from kids at school. “When I go to the pool, I see girls and boys that have only one birth mark that is barely noticeable,” said Perrie. “If I am wearing shorts people sometimes stare at my leg which makes me feel kind of bad.” In dance class, girls would come up to Perrie and start counting the birth marks on her back. “I may have NF, but I am living a life that I want to live and not letting anyone get to me.”
