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Weekend Pacesetter (July 23-25, 2010)

Posted: July 23rd, 2010 | Author: Emily Brown | Filed under: Weekend Pacesetter | Tags: , , , , , , , , , , , , , , , | No Comments »

SAN FRAN
From the early morning smells of sourdough bread baking…to the sun setting over the bay, it’s no wonder why Tony Bennett sang that it’s easy to leave your heart in San Francisco. On Sunday NFE runners, led by co-captains Josh Thieriot and Cathie Leys, will put their hearts on the course for NF Heroes in the San Francisco Marathon. Steve Kendra will be staffing the event. The San Francisco Marathon is unique because it offers two half marathons, one marathon, a progressive marathon and a 5K. The NFE San Fran Team has raised more than $17,500. You can help them meet their goal by donating here

RESEARCH
Check out Dr. Kim Hunter-Schaedle’s thoughts on Avastin and Breast Cancer on the Foundation’s blog this week. In the news this week, a Food and Drug Administration advisory recommended that the drug Avastin (bevacizumab), the best selling product of Roche, have its 2008 approval for advanced breast cancer treatment revoked. (Read more).

BUTTAR BUDDIES
Tracy Draper has helped NFE partner with Buttar.com, a race organization for events such as triathlons. Tracy recently competed in the Moss Park Tri in Orlando, Fla., and placed fourth in her age group. She is pictured here with her daughter, Suzie.

Active Fundraising Page of the Week
Monica Hattoon-Green
Why we like it: Monica’s clean design allows the viewer to clearly get the message: little Maria,  a family friend, has NF and could really use a cure. She succinctly describes what NF is and what can happen when symptoms manifest. She also directs viewers to learn more about research advancements by using “Team Fundraising Dollars at Work.”


Weekend Pacesetter (July 16-July 18, 2010)

Posted: July 16th, 2010 | Author: Emily Brown | Filed under: Weekend Pacesetter | Tags: , , , , , , , , , | No Comments »

HOWDY
We’ve partnered with the Texas Neurofibromatosis Foundation to work toward ending neurofibromatosis (NF). Check out the story here.

BIKE
This weekend, more than 9 bikers will trek from Seattle to Portland in the Seattle to Portland Bicycle Classic. These NFE runners have raised more than $17,000, surpassing their goal of $10,000. Check out their fundraising efforts here.

PARTY
Games, prizes, food and fun at the NF Carnival to benefit the Children’s Tumor Foundation in Glen Cove, N.Y. Hosted by NFE Runner Laura Perfetti. Last year, the Perfetti’s and their friends raised $6,075 for research from Carnival proceeds. Check out more information here.

WALK
On Sunday, the third annual Green Bay Connected for a Cure NF Walk will take place in Green Bay, Wis., (read more). The walk will be at the Bay Beach Amusement Park and Wildlife Sanctuary. For more information, please contact Traceeann Adams ((Enable Javascript to see the email address)).

Active Fundraising Page of the Week
Sally Richards
Why we like it: Sally Richards has decided she will be the CEO of NF2. Her active page has become her “formal business plan” as she fights for a cure. Check out how Sally has raised more than $3,000 so far in her training for the Rock ‘n’ Roll Chicago Half Marathon — click here.


Weekend Pacesetter (July 2-4, 2010)

Posted: July 2nd, 2010 | Author: Emily Brown | Filed under: Weekend Pacesetter | Tags: , , , , , , , , , , , , , , , | No Comments »


CELEBRATE
Check out some of Active.com’s Fourth of July ideas to make the holiday weekend full of fit fun.
- Eat Healthy at Your Summer Barbecue
- Fourth of July Races – The Fourth of July happens to also be a popular race day for many runners. More than 55,000 runners will fill the streets of Atlanta at the AJC Peachtree Road Race. To find a race near you, click here.

FLASH
Check out photos from last weekend’s Rock ‘n’ Roll Marathon in Seattle. NFE raised more than $33,000 for NF research. They are also on flickr.com/NFEndurance.

SKIRT
Earlier this year, Skirt! magazine featured Candice Patterson. Check out this followup Q&A on Candice published this week; she continues to inspire us with her resilience and dedication.

CAMP
Did you know that CTF has a summer camp each year for kids who have NF? The camp, located in Emigration Canyon, Utah, offers activities such as swimming, horseback riding, campfires, climbing, fishing and camp outings. For more information, please contact Patrice Pancza ((Enable Javascript to see the email address)). Check out this video about what makes this camp memorable for campers.

Active Page of the Week
Team Noah
Why we like it: Even though the Tyrybon’s are fundraising for Disney 2011, they keep their page up-to-date with fundraising events. If you are in the Michigan area in July, be sure to check out their golf outing on July 24th and their fourth annual Concert for Noah on July 30th. Our favorite reason about their fundraising page? The picture of their little rockstar, Noah!

Save the Date: Upcoming July Events
- Sunday, July 11, 2010 – NF Picnic, Sellersville, Pa. (for more info, click here)
- Saturday, July 17  – Seattle to Portland Bicycle Classic (for more info, click here); NF Carnival, New York, N.Y., (read more)
- Sunday, July 18, 2010 -Green Bay Connected for a Cure NF Walk, Green Bay, Wis., (read more)
- Sunday, July 25, 2010 – San Francisco Marathon, San Francisco, Calif.,  (for more info, click here)
- Friday, July 30, 2010 – Concert for Noah, Wynadotte, Mich., (for more info, click here)
- Saturday, July 31, 2010 – Bowling4Bumps, Brooklawn, N.J. (for more info visit Bowling4Bumps on Facebook); Izzy’s Backyard Carnival, Paw Paw, Mich., (read more)