10 Things to be Aware of on NF Awareness Day
Posted: May 20th, 2010 | Author: Emily Brown | Filed under: Children's Tumor Foundation | Tags: brain tumors, cancer, cystic fibrosis, Daytona, Drug Discovery Initiative, Duchenne muscular dystrophy, Huntington's disease, learning disabilities, neurofibromatosis, NF Clinic Network, NF Endurance, NF Walk, Racing4Research | 5 Comments »May is NF Awareness Month, and in a particular effort to help get the word out, we have designated Thursday, May 20 as NF Awareness Day. Please share this article with friends and family to help us get the word out and end NF! 
10. Neurofibromatosis (NF) affects more than 1 in every 3,000 children born each day (more than cystic fibrosis, Duchenne muscular dystrophy and Huntington’s disease combined) (learn more).
9. It only takes eight to 10 letters from you and your friends to your state representatives for them to begin noticing that NF is a REAL issue. (learn more).
8. NF research is shedding new light on cancer, brain tumors, learning disabilities, and bone abnormalities – ultimately benefiting the broader community and those with NF. (learn more)
7. On May 8, 2010, in Greensboro N.C., there were more than 1,700,000 steps taken to find a cure for NF at the first North Carolina NF Walk (learn more).
6. The NF Clinic Network now has 42 recognized centers throughout the country (learn more).
5. This year, Racing4Research completed 611 Laps in the Rolex 24 Hours at Daytona International Speedway raising spirits, funds and awareness for our NF Heroes! (learn more)
4. To date, the Foundation’s investment of $700,000 in the Drug Discovery Initiative has returned $3.7 million in follow-on funding. Every dollar counts. (learn more)
3. In 2009 more than 1,500 Runners in neon NF Singlets crossed finish lines in 50 races nationwide for the NF Endurance Team.(learn more)
2. There are three forms of neurofibromatosis: NF1, NF2, and schwannomatosis. Each can cause tumors to grow on nerve endings in or on the body. (learn more)
And the No. 1 thing to be Aware of on NF Awareness Day: Every day NF research is moving closer to treatments and a cure for the many manifestations of NF. Your continued support of this critical research is improving the lives of millions of people as we work to end NF.
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