We are sorry for the inconvenience, this is STILL the NF Endurance Energy Blog. We updated our WordPress version and it kind of messed things up... ehh errr... It should hopefully be fixed soon!
We are sad to report that we have lost a very special member of our NF Family — Bernedette “Bern” Tardio. Bernedette passed away this week. She had NF2. Bernedette’s sister, Tara Skirzenski, serves on the Children’s Tumor Foundation’s Board of Directors and has been an active part of the NF Endurance program for many years.
Breakfast for Dinner
“This is our standard Friday night dinner after our crazy week!” said Laura Perfetti. Pancakes are Julia “Ladybug” Perfetti’s favorite. Julia loves breakfast for dinner. Laura, mom to four kids, loves that pancakes are quick and easy.
Ladybug Pancakes
2 cups flour
2 cups milk
1 teaspoon baking powder
1/4 cup sugar
2 eggs
2 pinches of salt
A quick shake of cinnamon, optional
3 chocolate chips or blueberries per pancake, optional
Mix ingredients. Use a small cup to pour batter onto lightly oiled griddle or frying pan over medium heat. Brown on both sides. Serve hot. *This recipe is doubled for a four child household. The Perfetti’s like to sprinkle raspberries, strawberries, oranges and watermelon on top.
RSVP
The last day to RSVP for the Georgia NF Symposium is Monday, May 22, 2010. The May 26th symposium is packed with information about advances in NF research and advice on issues facing patients and families living with NF. Speakers will include Dr. Paul Fernhoff, Dr. Bruce Korf, Dr. Tobey MacDonald, Dr. Suma Shankar, Kim Bishoff and George Orfanakos. For more information about the symposium please read this SymposiumBrochure.
SCHEDULE
Check out Running in the USA for a complete schedule of race events to help prepare you for your next NFE event. Running in the USA catalogs upcoming races from across the country from 5Ks to 50ks.
May is NF Awareness Month, and in a particular effort to help get the word out, we have designated Thursday, May 20 as NF Awareness Day. Please share this article with friends and family to help us get the word out and end NF!
10. Neurofibromatosis (NF) affects more than 1 in every 3,000 children born each day (more than cystic fibrosis, Duchenne muscular dystrophy and Huntington’s disease combined) (learn more).
9. It only takes eight to 10 letters from you and your friends to your state representatives for them to begin noticing that NF is a REAL issue. (learn more).
8. NF research is shedding new light on cancer, brain tumors, learning disabilities, and bone abnormalities – ultimately benefiting the broader community and those with NF. (learn more)
7. On May 8, 2010, in Greensboro N.C., there were more than 1,700,000 steps taken to find a cure for NF at the first North Carolina NF Walk (learn more).
6. The NF Clinic Network now has 42 recognized centers throughout the country (learn more).
5. This year, Racing4Research completed 611 Laps in the Rolex 24 Hours at Daytona International Speedway raising spirits, funds and awareness for our NF Heroes! (learn more)
4. To date, the Foundation’s investment of $700,000 in the Drug Discovery Initiative has returned $3.7 million in follow-on funding. Every dollar counts. (learn more)
3. In 2009 more than 1,500 Runners in neon NF Singlets crossed finish lines in 50 races nationwide for the NF Endurance Team.(learn more)
2. There are three forms of neurofibromatosis: NF1, NF2, and schwannomatosis. Each can cause tumors to grow on nerve endings in or on the body. (learn more)
And the No. 1 thing to be Aware of on NF Awareness Day: Every day NF research is moving closer to treatments and a cure for the many manifestations of NF. Your continued support of this critical research is improving the lives of millions of people as we work to end NF.
We are sad to report that we have lost a very special member of our NF Family — Bernedette “Bern” Tardio. Bernedette passed away this week. She had NF2. Bernedette’s sister, Tara Skirzenski, serves on the Children’s Tumor Foundation’s Board of Directors and has been an active part of the NF Endurance program for many years.
