Team Theo Ink
Posted: March 31st, 2010 | Author: Emily Brown | Filed under: motivation | Tags: Team Theo Ink | 2 Comments »
Yes, it’s real. Do we need to say any more?

Yes, it’s real. Do we need to say any more?

Sarah Johnson is raising money for the NFE Boston Marathon Team.
Stuck in a fundraising rut? Try throwing a pasta dinner party for your friends and family before race weekend. Kindly ask that they make a donation to enjoy your famous spaghetti and meatballs, and you might just earn a quick stash of money for research. That is what Sarah Johnson did to support her boyfriend, Chris Lemons, who is running the Boston Marathon with NFE in April (check out his efforts here). Sarah’s suggested a donation of $10 to enjoy the culinary efforts of her friend, Christine, who is a chef. Sarah raised $205 at her “Eating for a Cure” event while netting $200 during her “March Madness Mondays” bake sales.
Sarah, who has done several events before, shared these tips with us.
1. Figure out a time line. The bigger the event, the more time you will need to organize and advertise.
2. Enlist the help of friends. By organizing an event that showcases your friends’ talents (i.e. passion/hobby/career), but also benefits the Foundation, it’s a win-win for all. i.e. “I have a friend that wants to do vegan catering, but needs practice cooking for large groups of people, hence a vegan-friendly pasta party,” said Sarah. “Last year, I got my stand-up comedian friends and friends of friends to do a comedy night.”

Guests enjoy dessert at Sarah Johnson's fundraising event for the Children's Tumor Foundation.
3. Donations
5. Advertise. There is no point to putting in all this work without advertising. Social networking is huge (and free). Advertise enough in advance to make sure people will put it on their calendar. YOU want to be the commitment on a Saturday night. Don’t forget posters at work and local stores (if possible). Again, you can ask to put an ad in community newsletters. Email, Evite and regular invitations are especially good for out-of-town people who would like to go, but can’t and could just make a donation. These options can also help you manage the guest list.
For big eating events, securing an RSVP is a great idea. This way you know how much food you may need.

Kevin Wales (left) and friends at an LSU tailgate.
Kevin Wales finished the Rock ‘n’ Roll Mardi Gras Half Marathon in February, raising more than $5,000 for NF research. For Kevin, who has NF1, this half marathon meant much more than completing 13.1 miles. “It meant doing something that at one time in my life would have been inconceivable,” said Kevin.
Kevin broke his right femur in March 1991 when he was in eighth grade. He was in the hospital, had to have to his leg in a cast, enduring many days of physical therapy. It took months for his leg to be back at full strength. Kevin’s orthopedist had to write a letter to his high school exempting him from physical education courses because of concern for further injury. Although Louisiana required two years of physical education to graduate, his doctor’s letter trumped the requirement; he had to take alternate courses instead.
So when Kevin crossed the finish line of the Rock ‘n’ Roll Mardi Gras Half Marathon, it meant much more — accomplishing something he never thought possible. “To be able to run 13.1 miles after nearly 19 years after that life-changing event, is, well, life-changing in and of itself,” said Kevin.
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Fundraising Secret: Modify letters. Kevin sent out more than 100 letters to his friends, family and community members. However, he tailored letters by how well the recipient knew him and how much they knew about what NF has done to him. For example, because his sister and three of her five children have NF, he could cut out how NF affected him personally. For other letters, he had to be more specific, without getting into too much detail, as he wanted to keep the letters down to one page only.
Training Tips: Start small. When he started training in the latter part of June of 2009, Kevin could barely finish three miles. His first goal was four miles, then five, until he could gradually increase his mileage to double digits. “Once I started focusing just on distance and ignored speed, I noticed that my speed on race days increased!” said Kevin. “When I was able to run 12 miles in late January and didn’t feel any pain afterward, plus no soreness the next day, I knew that I was ready.”