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Regional Support Network PDF Print E-mail
Remember the moment when you heard for the first time that your child or loved one has neurofibromatosis? Many people are seeking support and information from others who have traveled a similar path. The following are our NF HEROES who welcome your calls. If you would like to be added to our California Heroes Support Network, call our office: 888-314-6633.
Bay Area: Lisa Trygg – 415-990-5779
Tulare: Terri Fox – 559-685-8189
Lakewood: Rob Schafer--562.633.9247
Long Beach: Patti Montemer - 562-433-0125
Los Angeles: Vicki Pellerito – 310-378-0619
Los Angeles: Sue McElroy – 909-595-2849
Los Angeles: María Amparo Escandón - 310-441-0088 (Spanish speaking)
Northern California: Mark & Kitty Mooney – 530-596-3716
Orange County: Isabel Ward – 949-654-0480
San Diego: Marie McEneany – 858-759-2620
Santa Clara: Gail Hybarger – (408) 268-3010
Inland Empire: Shirley Morton – 909-795-4826
Santa Rosa: Mary Lou Smith – 707-575-7301
Santa Monica: Barbara Joffe Special Needs Resource Center – 310-452-4838